Arayz
New member
- Joined
- Apr 23, 2021
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- VT
- City
- Bennington
Hello. I'm a 36 year old mother of 2 young children. I'm writing on here because my neurology appointment isn't until July. I've been experiencing what I thought were twitches, but they're mostly unseen. It started above my upper lip, in the space between my upper lip and my nose. I could feel it but not see it. Since then it has progressed to twitches all over my body that sometimes seems so utterly random. There are times the twitches are big enough that I see them (not often), but mostly they're twitches I can't see and they happen seemingly randomly and don't stay in one place very long before moving to another location. They are pretty consistent in revisiting my feet and legs but I've had them in my stomach, back, butt, neck a couple times, back, knees and elbows, etc.
Of course when this started to bother me I Google searched possible causes. I found als as a possible cause and became frightened.
In November I had vertigo for the first time in my life that lasted 10 days. This is most likely completely unrelated. When it subsided I was dizzy and off feeling for months. My doctor and I talked about seeing a neurologist for this reason. I even had a brain mri without contrast because the dizziness would not go away and my doctor wanted to rule anything serious out. The dizziness is currently not as bad but it has been replaced with twitching.
I'm concerned. I was thinking about what I would say to the doctor when I see him or her. It feels like electrical currents in my body, sometimes when the twitching isn't happening but especially when it is. The twitching is very frequent. It goes all day and into the night. I feel it when I wake up at night.
I've since read about fibrillations (sp?) and became concerned about the fact that I feel these twitches or whatever you'd call them but mostly do not see them.
Does any of this sound like als? I've been very fatigued throughout all of this also. No muscle weakness. Sometimes I feel weak in my arms and legs, but maybe it's the stress from being anxious over this? What kind of weakness is of concern? I'm assuming something undeniable.
Thank you to anyone who's read this and answered. I so appreciate your taking the time to do so.
Some other info is that I drink 2 cups of coffee daily for years, no other caffeine sources. I take a multi vitamin and vitamin d. I've been drinking extra water since this started and eating bananas. Nothing stopping it.
My biggest question is: can you feel muscle fibrillation? Unfortunately I read an article that said if you feel a twitch but don't see it, that is very concerning and could be als .... I dont notice anything when I'm up and busy. The moment I sit or am at rest is starts up and it is hard not to feel distressed by them.
Thanks again to everyone who's reading this. I did read the post that you're supposed to read before posting. My fear is getting the better of me and I didn't see clarification on fasciculations vs. fibrillations. Hope I'm within the rules.
Of course when this started to bother me I Google searched possible causes. I found als as a possible cause and became frightened.
In November I had vertigo for the first time in my life that lasted 10 days. This is most likely completely unrelated. When it subsided I was dizzy and off feeling for months. My doctor and I talked about seeing a neurologist for this reason. I even had a brain mri without contrast because the dizziness would not go away and my doctor wanted to rule anything serious out. The dizziness is currently not as bad but it has been replaced with twitching.
I'm concerned. I was thinking about what I would say to the doctor when I see him or her. It feels like electrical currents in my body, sometimes when the twitching isn't happening but especially when it is. The twitching is very frequent. It goes all day and into the night. I feel it when I wake up at night.
I've since read about fibrillations (sp?) and became concerned about the fact that I feel these twitches or whatever you'd call them but mostly do not see them.
Does any of this sound like als? I've been very fatigued throughout all of this also. No muscle weakness. Sometimes I feel weak in my arms and legs, but maybe it's the stress from being anxious over this? What kind of weakness is of concern? I'm assuming something undeniable.
Thank you to anyone who's read this and answered. I so appreciate your taking the time to do so.
Some other info is that I drink 2 cups of coffee daily for years, no other caffeine sources. I take a multi vitamin and vitamin d. I've been drinking extra water since this started and eating bananas. Nothing stopping it.
My biggest question is: can you feel muscle fibrillation? Unfortunately I read an article that said if you feel a twitch but don't see it, that is very concerning and could be als .... I dont notice anything when I'm up and busy. The moment I sit or am at rest is starts up and it is hard not to feel distressed by them.
Thanks again to everyone who's reading this. I did read the post that you're supposed to read before posting. My fear is getting the better of me and I didn't see clarification on fasciculations vs. fibrillations. Hope I'm within the rules.