suzannj
Distinguished member
- Joined
- Jul 5, 2008
- Messages
- 121
- Reason
- Learn about ALS
- Country
- US
- State
- NY
- City
- Buffalo
Hi Everyone,
Something fairly new has been happening to me lately, and it's very disturbing so I was hoping for some feedback.
I had never had fascis in my tongue and had never looked for them either. However I've been having episodes where my tongue, cheeks, jaw, and upper neck area feel extremely fatigued. If you've ever been to an event where you have to smile a lot, and find yourself rubbing your face because it's "tired", that's pretty close, and when eating my tongue feels like I've been chewing on a tough steak for hours. I also feel like my throat is tight / closing and get relief only by hyper extending my neck/jaw toward the ceiling. All of this led me to the mirror, and low and behold, my tongue is now twitching too.
Of course, my other body-wide twitching has not let up, my right leg continues to be fatigued, still having myclonic type intermittent jerks, now with an added benefit of tremors in my left leg and right arm (but only in certain positions).
Two neuros, two clean EMG's (although bulbar area was never tested), and no official diagnosis either.
Thanks for any feedback on this,
Suzann
Something fairly new has been happening to me lately, and it's very disturbing so I was hoping for some feedback.
I had never had fascis in my tongue and had never looked for them either. However I've been having episodes where my tongue, cheeks, jaw, and upper neck area feel extremely fatigued. If you've ever been to an event where you have to smile a lot, and find yourself rubbing your face because it's "tired", that's pretty close, and when eating my tongue feels like I've been chewing on a tough steak for hours. I also feel like my throat is tight / closing and get relief only by hyper extending my neck/jaw toward the ceiling. All of this led me to the mirror, and low and behold, my tongue is now twitching too.
Of course, my other body-wide twitching has not let up, my right leg continues to be fatigued, still having myclonic type intermittent jerks, now with an added benefit of tremors in my left leg and right arm (but only in certain positions).
Two neuros, two clean EMG's (although bulbar area was never tested), and no official diagnosis either.
Thanks for any feedback on this,
Suzann