Mike12345
Active member
- Joined
- Feb 28, 2020
- Messages
- 37
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
- State
- VI
- City
- Mel
Unfortunately and regrettably I am back.
I had to be admitted to hospital as my symptoms progressed soo much so that I'm finding it difficult to raise my arms use my hands, get out of a chair and even walk. I won't go into it all, but in 1 week I have dropped 6kg.
I'm in substantial pain both physically and mentally.
I was told recently that I don't belong on this site, I prayed I didn't. But it appears in my case the stickie, intial nueros, emg tests were all not relevant to me and EMGs too early. I don't mean to frighten people or be rude, but just my case.
My physical exam today was horrendous in comparison to only a few weeks ago. Pics of my split hands are attached for reference or if people think I'm exaggerating (confirmed on both sides, and not ulnar neuropathy as thought). Atrophy in 4limbs, torso, tongue, neck confirmed and clear clinical weakness and failures were found all over. When I asked if it was MND, I was told yes they have grave concerns. I asked how certain based on the exam, and was told highly likely.
Mimics ruled out.
I'm only 32, supposed to be getting engaged to my beautiful girlfriend and starting a life with a house and kids. I have no idea at any age how people deal with this. It's too much.
[photos deleted by OP request]
This isn't the progress or news I wanted, and the fear is over whelming.
I had to be admitted to hospital as my symptoms progressed soo much so that I'm finding it difficult to raise my arms use my hands, get out of a chair and even walk. I won't go into it all, but in 1 week I have dropped 6kg.
I'm in substantial pain both physically and mentally.
I was told recently that I don't belong on this site, I prayed I didn't. But it appears in my case the stickie, intial nueros, emg tests were all not relevant to me and EMGs too early. I don't mean to frighten people or be rude, but just my case.
My physical exam today was horrendous in comparison to only a few weeks ago. Pics of my split hands are attached for reference or if people think I'm exaggerating (confirmed on both sides, and not ulnar neuropathy as thought). Atrophy in 4limbs, torso, tongue, neck confirmed and clear clinical weakness and failures were found all over. When I asked if it was MND, I was told yes they have grave concerns. I asked how certain based on the exam, and was told highly likely.
Mimics ruled out.
I'm only 32, supposed to be getting engaged to my beautiful girlfriend and starting a life with a house and kids. I have no idea at any age how people deal with this. It's too much.
[photos deleted by OP request]
This isn't the progress or news I wanted, and the fear is over whelming.
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