Hello everyone. This is all very new to me even though I feel as though I am getting a crash course in ALS care. My beautiful mother was diagnosed with ALS in October. She is 77 and lives with me. Her progression has been so fast I am having a hard time keeping up with all she needs. I have gotten her to an ALS clinic, bought her walkers, wheelchair, commode, hospital bed, stair chair, the hospital bed is coming this week, the PEG will go in tomorrow, I have quit my job and spend about 18 hours a day sitting with her.
My issue is that she is refusing to use the trilogy which she so desperately needs. She is showing all the signs of respiratory failure. She sleeps about 18-20 hours a day, she is delirious and confused most of the time, her fingernails and lips are turning blue yet she pushes the mask off her face and refuses to keep it on.
I don’t feel right forcing her to where it if it’s not what she wants. I told her she’ll die without it and she still says no, yet she wants to go to the hospital for the PEG. Am I doing the right thing by not forcing her to use it?. Have I done everything I can?
Thank you for listening, I really needed a place to vent and this seemed like the most appropriate place.
My issue is that she is refusing to use the trilogy which she so desperately needs. She is showing all the signs of respiratory failure. She sleeps about 18-20 hours a day, she is delirious and confused most of the time, her fingernails and lips are turning blue yet she pushes the mask off her face and refuses to keep it on.
I don’t feel right forcing her to where it if it’s not what she wants. I told her she’ll die without it and she still says no, yet she wants to go to the hospital for the PEG. Am I doing the right thing by not forcing her to use it?. Have I done everything I can?
Thank you for listening, I really needed a place to vent and this seemed like the most appropriate place.