Pkmado
Active member
- Joined
- Aug 11, 2012
- Messages
- 49
- Reason
- CALS
- Diagnosis
- 07/2012
- Country
- US
- State
- CT
- City
- Niantic
So here we are an hour from our home. Phil came into The hospital here for a PEG. He can no longer swallow his food. The Dr here specializes in ALS patients pegs. The VA in our area has been sited for unsanitary conditions. All over the news validating our decision to have the surgery do e elsewhere.
I stayed at a hotel nearby last night. To exhausted at the end of the long day before to enjoy the luxuries. When I first checked in earlier I thought, oh a pool I should of brought a swimsuit. As I passed the bar I said gee a double amaretto on the rocks before bed would be wonderful. Maybe a steak tonight with room service, I haven't had a steak in well over a year. Even if we weren't watching cash like everyone else.
I returned to from the hospital went to my room. Cracked a bottle of water sent off a group email to friends and family and passed out for the best nights sleep in ages.
Woke up and took the first solo hot shower in memory. I dressed for the day. I looked myself over. Uncut toenails (although my pals had a mani pedi ready for hospital) I have not shaved under my arms or my legs in recent memory. I hadn't even noticed. Powder my face run a brush through my hair. I have arrived, a true caretaker.
Off to take care of my guy with my fellow cals in my heart. Good day to you all.
I stayed at a hotel nearby last night. To exhausted at the end of the long day before to enjoy the luxuries. When I first checked in earlier I thought, oh a pool I should of brought a swimsuit. As I passed the bar I said gee a double amaretto on the rocks before bed would be wonderful. Maybe a steak tonight with room service, I haven't had a steak in well over a year. Even if we weren't watching cash like everyone else.
I returned to from the hospital went to my room. Cracked a bottle of water sent off a group email to friends and family and passed out for the best nights sleep in ages.
Woke up and took the first solo hot shower in memory. I dressed for the day. I looked myself over. Uncut toenails (although my pals had a mani pedi ready for hospital) I have not shaved under my arms or my legs in recent memory. I hadn't even noticed. Powder my face run a brush through my hair. I have arrived, a true caretaker.
Off to take care of my guy with my fellow cals in my heart. Good day to you all.