- Jul 9, 2007
Has anyone ever started with fasciculations and cramps--- went to see an ALS specialist and had all the tests-- seen the specialist again.... And then been diagnosed at a later date... With the specialist originally saying both times it is not ALS? I am just curious to see how often an expert has been incorrect from the beginning. I have been tod that by the time the fasciculations start and the cramping exists-- there should be some abnormalities in the EMG or clinical finding if ALS is beginning to create reasonable suspission. I have been to many doctors and a well know expert in the field and they all say no-- but as we all know-- no one knows how one feels other than yourself.