Boo Boo 621
Active member
- Joined
- Dec 14, 2008
- Messages
- 41
- Country
- US
- State
- VA
- City
- Manassas
Happy New Year Everyone!
It's Boo Boo. I don't think I've been on the site in a couple weeks now. I had to stay away and gain some sanity. I am back because I while I wanted to check in and say hello, I wanted to share that when I originally found this site, I honestly didn't even realize I would in fact be speaking with folks that were actually living with ALS - hence why I said Al sounded like he was all-knowing. As odd as that may sound, this being an ALS forum and all, my mind was completely out of whack and I just didn't know where to turn and try and gain some perspective. I started reaching out when I noticed endless (right) calf twitching and some other random body twitches. I did not have any atrophy or weakness and now finally understand what it means when everyone kept having to tell me those are two of the hallmark symptoms I wasn't presenting.
Anyway, the exciting news is that the calf twitching finally stopped and it's been almost two weeks since it went away! The bad news is that 2-3 days ago, I noticed my left hand ring finger twitching. Please understand that I am aware of my anxiety and that even though I felt so happy the calf twitching stopped and felt more normal again, I do know that for whatever reason these days, whenever something goes wrong or feels weird, my mind is taken to very dark places. I can see/feel the twitch on the top of my hand in between the pinky and ring finger knuckle which in turn makes the finger twitch. It happens periodically, mostly at rest and sometimes when my finger is curled up or maybe holding something. I have read ALS can start in the hands - I'm assuming this ALSO means there must be atrophy and weakness so I won't go there - but does anyone have any experience with Parkinsons? My great-grandmother had it. My family is having a hard time with me right now since I can't stop thinking the worst. I have two appts Monday, one with my family doc to discuss the anxiety/depression I have been experiencing the past month, along with the obsessive thoughts. I also have an appt with a neuro as I just don't understand what has been going on with my body lately. I just want the twitching to stop. Of course I read that Michael J. Fox's started in his pinky and the only piece of info that sometimes helps relieve me right now is that his just wouldn't stop. I at least get some breaks. So since it's Saturday and I'm trying VERY hard not to think about all of this before I go to the doctor Monday, could someone please reply to me? I am once again fearful (a little bit) of ALS but moreso Parkinson's. I also have some little weird rash thing that appeared on my face. I thought it was a pimple but it's not. It's scabby and when I looked up what it might be, I found seborrhea dermatitis - a symptom of PD nonetheless. This is not funny and I'm very scared again. Please reply.
It's Boo Boo. I don't think I've been on the site in a couple weeks now. I had to stay away and gain some sanity. I am back because I while I wanted to check in and say hello, I wanted to share that when I originally found this site, I honestly didn't even realize I would in fact be speaking with folks that were actually living with ALS - hence why I said Al sounded like he was all-knowing. As odd as that may sound, this being an ALS forum and all, my mind was completely out of whack and I just didn't know where to turn and try and gain some perspective. I started reaching out when I noticed endless (right) calf twitching and some other random body twitches. I did not have any atrophy or weakness and now finally understand what it means when everyone kept having to tell me those are two of the hallmark symptoms I wasn't presenting.
Anyway, the exciting news is that the calf twitching finally stopped and it's been almost two weeks since it went away! The bad news is that 2-3 days ago, I noticed my left hand ring finger twitching. Please understand that I am aware of my anxiety and that even though I felt so happy the calf twitching stopped and felt more normal again, I do know that for whatever reason these days, whenever something goes wrong or feels weird, my mind is taken to very dark places. I can see/feel the twitch on the top of my hand in between the pinky and ring finger knuckle which in turn makes the finger twitch. It happens periodically, mostly at rest and sometimes when my finger is curled up or maybe holding something. I have read ALS can start in the hands - I'm assuming this ALSO means there must be atrophy and weakness so I won't go there - but does anyone have any experience with Parkinsons? My great-grandmother had it. My family is having a hard time with me right now since I can't stop thinking the worst. I have two appts Monday, one with my family doc to discuss the anxiety/depression I have been experiencing the past month, along with the obsessive thoughts. I also have an appt with a neuro as I just don't understand what has been going on with my body lately. I just want the twitching to stop. Of course I read that Michael J. Fox's started in his pinky and the only piece of info that sometimes helps relieve me right now is that his just wouldn't stop. I at least get some breaks. So since it's Saturday and I'm trying VERY hard not to think about all of this before I go to the doctor Monday, could someone please reply to me? I am once again fearful (a little bit) of ALS but moreso Parkinson's. I also have some little weird rash thing that appeared on my face. I thought it was a pimple but it's not. It's scabby and when I looked up what it might be, I found seborrhea dermatitis - a symptom of PD nonetheless. This is not funny and I'm very scared again. Please reply.