dkcarl62
Distinguished member
- Joined
- Nov 12, 2014
- Messages
- 220
- Reason
- DX UMND/PLS
- Diagnosis
- 03/2015
- Country
- US
- State
- mi
- City
- Novi
I have clinic soon and I know the issue of a baclofen pump is going to come up again. I believe they offer the pump to all with PLS, but I believe it is more helpful to some than others. So I’m doing my research to find the ideal model for a successful pump installation. Will you take a minute to answer questions about your pump success story?
How long did you have pls before getting pump?
How old were u when got pump?
What was your level of functioning? Still walking? Totally wheelchair bound?
What dose of oral baclofen were you on before pump?
What oral dose do you take now?
Upper body effected before pump?
Is decline in legs symmetrical?
Did your function improve after pump? I.e.: Couldn’t walk before and after could?
During the recovery period did you lose function that you didn’t get back, or decline further?
Have any back issues?
Did your degree of stiffness vary? Is the pump set for the most or least degree of stiffness you’ve experienced?
Thank you for your time in helping me make this decision!
How long did you have pls before getting pump?
How old were u when got pump?
What was your level of functioning? Still walking? Totally wheelchair bound?
What dose of oral baclofen were you on before pump?
What oral dose do you take now?
Upper body effected before pump?
Is decline in legs symmetrical?
Did your function improve after pump? I.e.: Couldn’t walk before and after could?
During the recovery period did you lose function that you didn’t get back, or decline further?
Have any back issues?
Did your degree of stiffness vary? Is the pump set for the most or least degree of stiffness you’ve experienced?
Thank you for your time in helping me make this decision!
