mhewitt2222
Member
- Joined
- May 11, 2022
- Messages
- 11
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MN
- City
- Carver
Hello,
I started having finger pain and tremor or clonus in my right hand 11 months ago (still there and has since gone into my left hand). Visited a respected neurologist institution in Minnesota back in July of 2021. I got an EMG performed by an outside clinic after this appointment (didn't want to wait months to get one from the Neurologist place). It came back clean with an indicator of carpal tunnel in right wrist). Thought I was done with that all and could move on with my life! The terrible pains in my knuckles and hands kept getting worse though (that have bounced around but are mainly in the middle three fingers on both hands).
Flash forward to January of 2022 and I start getting vibration (like the purring being discussed in some of the threads on this site) in both feet. Just thought it was from a new med I was taking to deal with the pain I'm my neck and back. Stopped taking that med for 3 1/2 months now and they are getting worse! They currently go from tingle/popcorn/vibration. I didn't realize that when looking closely at my feet that a lot of these are visible fasciculations! They have since climbed up into my calves and legs & buttas fasciculations. I also hand a constant fasciculations in my right deltoid for 3 weeks but has since disappeared.
I currently get really bad muscle jerks in arms and legs most of the time but mainly when trying to fall asleep. I don't sleep well and I have lost 20% of my weight in a 2 year stretch.
No visible atrophy I cam see or clinical weakness I notice but my balance has been bad and I have fallen several times.
Wondering if anyone would PLEASE help shed some light on thoughts on this?
I had an MRI on my spine and there isn't anything there that could be causing the feet issues. I have a 2nd EMG schedule for Monday on both arms and legs.
After reading almost everything on this wonderful forum the past 2 months I decided to get the courage to post this for any guidance?
Thanks for the help in advance and will always pray for ALL PALS & CALS!
GOD BLESS YOU ALL
I started having finger pain and tremor or clonus in my right hand 11 months ago (still there and has since gone into my left hand). Visited a respected neurologist institution in Minnesota back in July of 2021. I got an EMG performed by an outside clinic after this appointment (didn't want to wait months to get one from the Neurologist place). It came back clean with an indicator of carpal tunnel in right wrist). Thought I was done with that all and could move on with my life! The terrible pains in my knuckles and hands kept getting worse though (that have bounced around but are mainly in the middle three fingers on both hands).
Flash forward to January of 2022 and I start getting vibration (like the purring being discussed in some of the threads on this site) in both feet. Just thought it was from a new med I was taking to deal with the pain I'm my neck and back. Stopped taking that med for 3 1/2 months now and they are getting worse! They currently go from tingle/popcorn/vibration. I didn't realize that when looking closely at my feet that a lot of these are visible fasciculations! They have since climbed up into my calves and legs & buttas fasciculations. I also hand a constant fasciculations in my right deltoid for 3 weeks but has since disappeared.
I currently get really bad muscle jerks in arms and legs most of the time but mainly when trying to fall asleep. I don't sleep well and I have lost 20% of my weight in a 2 year stretch.
No visible atrophy I cam see or clinical weakness I notice but my balance has been bad and I have fallen several times.
Wondering if anyone would PLEASE help shed some light on thoughts on this?
I had an MRI on my spine and there isn't anything there that could be causing the feet issues. I have a 2nd EMG schedule for Monday on both arms and legs.
After reading almost everything on this wonderful forum the past 2 months I decided to get the courage to post this for any guidance?
Thanks for the help in advance and will always pray for ALL PALS & CALS!
GOD BLESS YOU ALL