Kafi76
New member
- Joined
- Mar 4, 2022
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- PT
- City
- Lisbon
Dears, thank you so much for your valuable time in helping all of us out here that are completely in panic to have ALS, like my case.
I’m 45 y male
I would like to ask your opinion on my history:
- In Nov.2021 started with my right thumb getting stucked and sometimes twitching after making force with it
- by that time started having difficulties in keeping right wrist up in the position to type in the computer or to use mouse. Some days were better then others. It has being slowly worsening and now after 4 months I can have my wrist up in computer for like 5-10mins I have to be making a lot of force, like raising 100kg. And need to stop using the computer because of this weakness
- beginning Jan.2022 I started twitching all over my body. Sometime it’s one twitch only, sometime it stays for 30sec. But this happens all over my body (fingers, face, back, chest, arms,…)
- I also notice now when I get to sleep I have much more and bigger “sleep starts jumps” (one leg bumps, then arm, then can be head)
- since 3 weeks ago my hands, specially in fingers started shaking. Shakes are much more evident in the fingers of my right hand. When I place my hand straight against gravity the hand starts increasing the amplitude of the shaking like uncontrollably
- I notice that my right hand is more atrophied then left, I can see a difference specially between fingers it’s (please see picture)
- I still can hold things and grip, but always shaking, like when holding mobile
- this sense of weakness is now going up to the arm. It’s like I need to make more effort to hold things and that makes me shake more
I got MRIs (clean) and EMG (clean with good NCVs which I would prefer to have been bad, then I would have an explanation…)
In clinical exam by neuro, he noticed that I use less the right arm then my left when walking.
But ge said it’s not ALS because of the clean EMG.
But because I have so many matching symptoms, this is taking my life away. I’m 24/7 thinking I have ALS, I just cry closed in a dark room 24/7. I’m now on antidepressants.
Could you please help me?
-can it be that EMG was made too soon, because I still can hold things and function with my hand (despite with difficulties), so maybe I don’t have yet enough de-enervation that EMG could detect? I was tested in right leg and both arms and hands
- can this shaking when holding things means that I am loosing muscle fibers slowly? Did anyone experienced it this way, I read testimonials like “my foot stopped working” or “the hand” , but can it be gradual like I have and going through this shaking phase I have?
1000 times thank you for helping a desperate guy completely lost!
I’m 45 y male
I would like to ask your opinion on my history:
- In Nov.2021 started with my right thumb getting stucked and sometimes twitching after making force with it
- by that time started having difficulties in keeping right wrist up in the position to type in the computer or to use mouse. Some days were better then others. It has being slowly worsening and now after 4 months I can have my wrist up in computer for like 5-10mins I have to be making a lot of force, like raising 100kg. And need to stop using the computer because of this weakness
- beginning Jan.2022 I started twitching all over my body. Sometime it’s one twitch only, sometime it stays for 30sec. But this happens all over my body (fingers, face, back, chest, arms,…)
- I also notice now when I get to sleep I have much more and bigger “sleep starts jumps” (one leg bumps, then arm, then can be head)
- since 3 weeks ago my hands, specially in fingers started shaking. Shakes are much more evident in the fingers of my right hand. When I place my hand straight against gravity the hand starts increasing the amplitude of the shaking like uncontrollably
- I notice that my right hand is more atrophied then left, I can see a difference specially between fingers it’s (please see picture)
- I still can hold things and grip, but always shaking, like when holding mobile
- this sense of weakness is now going up to the arm. It’s like I need to make more effort to hold things and that makes me shake more
I got MRIs (clean) and EMG (clean with good NCVs which I would prefer to have been bad, then I would have an explanation…)
In clinical exam by neuro, he noticed that I use less the right arm then my left when walking.
But ge said it’s not ALS because of the clean EMG.
But because I have so many matching symptoms, this is taking my life away. I’m 24/7 thinking I have ALS, I just cry closed in a dark room 24/7. I’m now on antidepressants.
Could you please help me?
-can it be that EMG was made too soon, because I still can hold things and function with my hand (despite with difficulties), so maybe I don’t have yet enough de-enervation that EMG could detect? I was tested in right leg and both arms and hands
- can this shaking when holding things means that I am loosing muscle fibers slowly? Did anyone experienced it this way, I read testimonials like “my foot stopped working” or “the hand” , but can it be gradual like I have and going through this shaking phase I have?
1000 times thank you for helping a desperate guy completely lost!
Attachments
Last edited by a moderator: