shellshell
Active member
- Joined
- Apr 11, 2007
- Messages
- 61
- Reason
- Loved one DX
- Country
- US
- State
- Arkansas
- City
- Scott
You ALL are amazing!
My dad pretty much is in his wheelchair at home and of course when we go somewhere with him he is in it. It is VERY difficult to watch him decline so rapidly, it was just January 2007 that he was still working and now he's in a wheelchair most of the time and his left hand cramps up and he has to use his right hand to pull his fingers back out to a normal position. He is also experiencing a lot of muscle cramping, like "charlie horses" all over.
I love both my parents so much and will do WHATEVER it takes to make this as of a transition for him as possible. My husband and I mow their lawn and do most of the yard work for them and he just follows behind us in his chair. He has finally given in to us "helping" more, he's very independant...
His birthday was yesterday (he turned 59) and we had a "good day". These days we refer to days as "good" or "bad" but yesterday was good. I am so very excited for him, we live in Arkansas and my husband and I found one of his old Vietnam buddies who lives in North Carolina and my dad, mom and another family member are traveling there tomorrow to see him. I know it will be such a long trip for my dad but if he is able to go I want him to do so! Anything that brings a smile to his face right now is what brings a smile to mine.
We, as caregivers feel so helpless sometimes and almost like we just can't do enough. I see my dad everyday and do anything I can to make things easier on him and my mom from cleaning their house to taking down the shower doors and putting up a shower curtain so he can use the shower chair we bought.
Right now, I feel like I just can't get enough of him, like I want to be with him every minute of every day! I never ever want to regret anything or take anything for granted...This disease makes you put things in your life in such perspective!
This forum is such a God send. I've learned so much for all of you on this forum, I truely feel like part of the ALS family...Thank you so much for taking me in! :grin:
Michelle
My dad pretty much is in his wheelchair at home and of course when we go somewhere with him he is in it. It is VERY difficult to watch him decline so rapidly, it was just January 2007 that he was still working and now he's in a wheelchair most of the time and his left hand cramps up and he has to use his right hand to pull his fingers back out to a normal position. He is also experiencing a lot of muscle cramping, like "charlie horses" all over.
I love both my parents so much and will do WHATEVER it takes to make this as of a transition for him as possible. My husband and I mow their lawn and do most of the yard work for them and he just follows behind us in his chair. He has finally given in to us "helping" more, he's very independant...
His birthday was yesterday (he turned 59) and we had a "good day". These days we refer to days as "good" or "bad" but yesterday was good. I am so very excited for him, we live in Arkansas and my husband and I found one of his old Vietnam buddies who lives in North Carolina and my dad, mom and another family member are traveling there tomorrow to see him. I know it will be such a long trip for my dad but if he is able to go I want him to do so! Anything that brings a smile to his face right now is what brings a smile to mine.
We, as caregivers feel so helpless sometimes and almost like we just can't do enough. I see my dad everyday and do anything I can to make things easier on him and my mom from cleaning their house to taking down the shower doors and putting up a shower curtain so he can use the shower chair we bought.
Right now, I feel like I just can't get enough of him, like I want to be with him every minute of every day! I never ever want to regret anything or take anything for granted...This disease makes you put things in your life in such perspective!
This forum is such a God send. I've learned so much for all of you on this forum, I truely feel like part of the ALS family...Thank you so much for taking me in! :grin:
Michelle