Hi, I'm new here. I'm glad I found this forum. At the begining, sorry for bad english
My father also has been diagnosed with ALS 5 years ago. He can't do anything by himself. For a few weeks he is breathing harder and he started to whispering. He has problem with some kind of secretion from lungs. Does anybody know how could he deal with it? When is the right time for tracheotomy?
After the diagnose, his doctor mentioned Rilutek and Riluzol, but he told us that it's very expensive (we should order it from abroad!) but not successfully. He said that we would probably 'come to the parish' by buying that drug, and it would do no good for my father. We believed him, but today I'm not sure was that a right decision. For these five years, he's been taking only many of vitamins.
Please tell me what do you think (I read some of your posts but it's too much for my english knowledge).
Anyway, we live in Croatia, Europe (Zadar-Adriatic coast) and my name is Natasa.
God bless you all...
My father also has been diagnosed with ALS 5 years ago. He can't do anything by himself. For a few weeks he is breathing harder and he started to whispering. He has problem with some kind of secretion from lungs. Does anybody know how could he deal with it? When is the right time for tracheotomy?
After the diagnose, his doctor mentioned Rilutek and Riluzol, but he told us that it's very expensive (we should order it from abroad!) but not successfully. He said that we would probably 'come to the parish' by buying that drug, and it would do no good for my father. We believed him, but today I'm not sure was that a right decision. For these five years, he's been taking only many of vitamins.
Please tell me what do you think (I read some of your posts but it's too much for my english knowledge).
Anyway, we live in Croatia, Europe (Zadar-Adriatic coast) and my name is Natasa.
God bless you all...