Hello All,
Well I had my neuro appt yesterday. I will have to say this neuro was soooo much better than the 1st one I saw. I wish I could have seen her in the beginning and I think I would be a lot further down this road by now. Anyway, she was very kind and caring and seemed attentive and listened to my concerns. She said it was very difficult to tie all my symptoms together to fit one thing. That was not a surprise to me. She said that some of the symptoms sound like MG while others do not fit. However, she wants to check for MG (and its variants) again. She said she did not believe I had ALS. She did a fairly thorough clinical exam....way more than the 1st neuro had done. She checked my reflexes and if she noted any problems she didn't tell me. She had me do several things that I am assuming were testing my strength and coordination. She did detect some weakness in my right leg, which concerns me especially since I seem to notice some wasting in my right hip. I tried to point it out to her but I don't know if she really saw it. I plan to ask her about it again when I return. This is also kind of interesting because it seems most of my problems are on the left side of my body. Anyway, she wants to do an EMG. They were supposed to call me today to schedule it but I haven't heard from them. She told me it would be within the next 2 weeks and that she would perform it herself. She had them do the blood work for MG again.
Of course, I was happy to hear her say she did not think it was ALS! But it is still difficult to let go of all the fear when you return home and all the symptoms that concern you are still there. I question whether I portrayed the symptoms accurately for her...but her testing should tell the story. I know many of you probably think I am a hypochondriac who just can't let this go. But this is not like me at all. In fact I can't remember the last time I went to the doctor before all this began. My only drs visits were OB/GYN
And I have read the stickies. They are helpful in many ways, but still raise some questions. I know ALS is not supposed to be about pain, but then other posts will discuss the pain they are experiencing. I know with AlS things "fail", but do you not experience some sort of weakness in arms. legs, hands etc. before that happens?
I will be hoping and praying that the EMG comes back clean and confirms without a doubt that this is not ALS.
I'm sorry I've written another novel and I said I wouldn't.
Thanks for listening and thank you for your courage and the encouragement you are to me.
KITT
Well I had my neuro appt yesterday. I will have to say this neuro was soooo much better than the 1st one I saw. I wish I could have seen her in the beginning and I think I would be a lot further down this road by now. Anyway, she was very kind and caring and seemed attentive and listened to my concerns. She said it was very difficult to tie all my symptoms together to fit one thing. That was not a surprise to me. She said that some of the symptoms sound like MG while others do not fit. However, she wants to check for MG (and its variants) again. She said she did not believe I had ALS. She did a fairly thorough clinical exam....way more than the 1st neuro had done. She checked my reflexes and if she noted any problems she didn't tell me. She had me do several things that I am assuming were testing my strength and coordination. She did detect some weakness in my right leg, which concerns me especially since I seem to notice some wasting in my right hip. I tried to point it out to her but I don't know if she really saw it. I plan to ask her about it again when I return. This is also kind of interesting because it seems most of my problems are on the left side of my body. Anyway, she wants to do an EMG. They were supposed to call me today to schedule it but I haven't heard from them. She told me it would be within the next 2 weeks and that she would perform it herself. She had them do the blood work for MG again.
Of course, I was happy to hear her say she did not think it was ALS! But it is still difficult to let go of all the fear when you return home and all the symptoms that concern you are still there. I question whether I portrayed the symptoms accurately for her...but her testing should tell the story. I know many of you probably think I am a hypochondriac who just can't let this go. But this is not like me at all. In fact I can't remember the last time I went to the doctor before all this began. My only drs visits were OB/GYN
And I have read the stickies. They are helpful in many ways, but still raise some questions. I know ALS is not supposed to be about pain, but then other posts will discuss the pain they are experiencing. I know with AlS things "fail", but do you not experience some sort of weakness in arms. legs, hands etc. before that happens?
I will be hoping and praying that the EMG comes back clean and confirms without a doubt that this is not ALS.
I'm sorry I've written another novel and I said I wouldn't.
Thanks for listening and thank you for your courage and the encouragement you are to me.
KITT