snowbirdqv
New member
- Joined
- Dec 20, 2007
- Messages
- 3
- Reason
- CALS
- Diagnosis
- 04/2005
- Country
- CA
- State
- Manitoba
- City
- Treherne
Hi Al! I have thought of all of you often. After I lost my husband in August 2005, I went into a deep depression and ended up in the hospital for 3 weeks in November. Much of it was grief, and much of is was caregiver burnout. Anyway, upon getting released from the hospital, I spent a good Christmas with my family, flushed all my meds, hooked onto my 5th wheel, and headed back to Yuma, AZ. I had taken my hubby there twice(2004 & 2005), and this is my 3rd year of returning by myself. I enjoy the break, and it keeps me close to him and our friends. I have a winter home on the Colorado River (www.hiddenshores.com), and was just there in November to get my 5th wheel set up. I plan to return in January. I would be happy to show anyone around Yuma if they can get down there. It sure beats our wretched Canadian winters and the ice.
My husband's ALS was combined with another rare disease, Mantle Cell Lymphoma. He lived for 3 yrs after the first signs of anything being amiss. His first sign was weakness in his one arm, and it progressed to his other arm and then his legs. He did not have any bulbar involvement, thank God. He chose to not have any life support, so when he finally got aspiration pneumonia which our doctor expected, it was his time.
Has there been any new research into causes, cures, treatments, etc.? I still believe that inhaled chemicals play a huge role. In MB it was claimed that the majority of ALS patients were rural, then automotive industry, and then firefighters. My husband ran an auto/ag dealership, farmed on the side, and was fire chief for 25 yrs. 3 strikes, you're out, I suppose.
On a good note, he LIVED every day of his life. In his short 62 yrs, he likely lived more than a lot of 80 yr olds. For that I am grateful, and I am grateful for our wonderful life and all of the wonderful memories that I cherish. We may not understand why things happen as they do, but we can choose to make the best of it.
Pat ..... aka snowbirdqv
My husband's ALS was combined with another rare disease, Mantle Cell Lymphoma. He lived for 3 yrs after the first signs of anything being amiss. His first sign was weakness in his one arm, and it progressed to his other arm and then his legs. He did not have any bulbar involvement, thank God. He chose to not have any life support, so when he finally got aspiration pneumonia which our doctor expected, it was his time.
Has there been any new research into causes, cures, treatments, etc.? I still believe that inhaled chemicals play a huge role. In MB it was claimed that the majority of ALS patients were rural, then automotive industry, and then firefighters. My husband ran an auto/ag dealership, farmed on the side, and was fire chief for 25 yrs. 3 strikes, you're out, I suppose.
On a good note, he LIVED every day of his life. In his short 62 yrs, he likely lived more than a lot of 80 yr olds. For that I am grateful, and I am grateful for our wonderful life and all of the wonderful memories that I cherish. We may not understand why things happen as they do, but we can choose to make the best of it.
Pat ..... aka snowbirdqv
