Katalin
Distinguished member
- Joined
- Sep 22, 2018
- Messages
- 114
- Reason
- Lost a loved one
- Diagnosis
- 05/2018
- Country
- CA
- State
- Ontario
- City
- Toronto
Sadly, my sister passed away last week, and the family is gutted. She was a bright light, and we miss her terribly. My 87 year old Mum is grieving hard. Yesterday she was crying with full abandon, and suddenly felt she couldn't breathe. I've read here before that PALS can have spasms, and that they have to relax to breathe again. So I got her upright in the bed, told her to relax, try to stop crying, and relax, and quickly she got her breath again. Thankfully the forum has helped with that. I wouldn't have known otherwise.
She says it's the first time, but the last few days, she's been asking for windows to be opened, and wants a fan blowing her way. Ironically, it was the last thing my dear sister asked for, was a fan blowing on her, only a few hours before her passing.
We're not scheduled for the ALS clinic till February, but this loss seems to have weakened her, just in the last week. We're pretty sure she won't make the funeral this week...it's a 30 minute drive one way, and she wants to just see her at a visitation. I think she's not strong enough to do the trip two days in a row. She doesn't either. AND we're moving into a new apartment in my building on Monday. Feeling very overwhelmed, but really worried about that breathing spasm. Is this the start of something new?
She says it's the first time, but the last few days, she's been asking for windows to be opened, and wants a fan blowing her way. Ironically, it was the last thing my dear sister asked for, was a fan blowing on her, only a few hours before her passing.
We're not scheduled for the ALS clinic till February, but this loss seems to have weakened her, just in the last week. We're pretty sure she won't make the funeral this week...it's a 30 minute drive one way, and she wants to just see her at a visitation. I think she's not strong enough to do the trip two days in a row. She doesn't either. AND we're moving into a new apartment in my building on Monday. Feeling very overwhelmed, but really worried about that breathing spasm. Is this the start of something new?