NickV
Member
- Joined
- Feb 18, 2019
- Messages
- 13
- Reason
- DX UMND/PLS
- Diagnosis
- 05/2018
- Country
- US
- State
- CA
- City
- Hollister
Hello Everyone,
I've been all over the website now for a while and have read a wealth of information that I have found useful as I negotiate my journey . So a big Thank You to all of the contributors that have taken the time post . Your experiences and knowledge have already helped me as I continue to adjust my life while preparing for the future. I hope I can reciprocate in someway.
I've been diagnosed 9 months now (May 2018) . Because I exercised moderately everyday, I noticed my repetitions started to drop off, and went to see my PCP for my 60th birthday checkup and 7 months later I received my fate.
Theses days, while I am still getting up, the steps are getting more difficult along with walking and I am now using two hands to grip a coffee mug. I'm on both Riluzole and Radicava (84 doses currently) which I am uncertain about the effectiveness. There has still been consistent noticeable progression.
I was diagnosed at Stanford and I am still being seen there while also participating in one of their current drug studies ( no noticeable effects). I happened to be a Vet (Army 75-79) so I'm also getting care with the VA system. So a shout out to the VA and all the Veterans. I am so proud to be among you and proud to have experienced military service while not always being happy about it at the time.
So greetings to all, and I look forward to getting to know you better.
Sincerely,
Nick Velho
I've been all over the website now for a while and have read a wealth of information that I have found useful as I negotiate my journey . So a big Thank You to all of the contributors that have taken the time post . Your experiences and knowledge have already helped me as I continue to adjust my life while preparing for the future. I hope I can reciprocate in someway.
I've been diagnosed 9 months now (May 2018) . Because I exercised moderately everyday, I noticed my repetitions started to drop off, and went to see my PCP for my 60th birthday checkup and 7 months later I received my fate.
Theses days, while I am still getting up, the steps are getting more difficult along with walking and I am now using two hands to grip a coffee mug. I'm on both Riluzole and Radicava (84 doses currently) which I am uncertain about the effectiveness. There has still been consistent noticeable progression.
I was diagnosed at Stanford and I am still being seen there while also participating in one of their current drug studies ( no noticeable effects). I happened to be a Vet (Army 75-79) so I'm also getting care with the VA system. So a shout out to the VA and all the Veterans. I am so proud to be among you and proud to have experienced military service while not always being happy about it at the time.
So greetings to all, and I look forward to getting to know you better.
Sincerely,
Nick Velho