Beach61
Member
- Joined
- Dec 30, 2008
- Messages
- 26
- Reason
- Learn about ALS
- Country
- US
- State
- Ca
- City
- Pall alto
Well the waiting for my EMG test was hell.
I had painted a picture in my mind that resulted in an ALS diagnosis. I was shaking while waiting in the doctors office.
The test began with an ECV, this is a very uncomfortable procedure lots of jumping. The test was done on my right leg and my left arm.
Then the EMG which was not as bad. This was done in my legs and arms no torso no tongue.
After the test I asked the Doc on the results. She emphatically stated that this is not ALS and that the results were normal. She did say she had a weak reading on my right foot with the ECV perhaps some kind of neuropathy.
I asked her about the equipment used, she indicated that it was the same as what she uses at Stanford and the UCSF ALS Clinic. I asked her about her experience with ALS She indicated that she works at the Stanford and UCSF clinics and did her fellowship under some ALS renowned Doctor (forgot the name).
I broke into tears and left the office feeling like I was on top of the world.
I have an appointment on Thursday to formally review the results.
That evening however I noticed my voice getting weaker again and after a big dinner my tongue started to feel strange again. When I went to bed I was finding breathing difficult, it wasn't like I had short breaths just a feeling that I was not getting enough air.
The next day I did not feel any better I still fell weak, my tongue feels strange in my mouth,
I got tired at the end of the day, so I called my PCP and he told me to come in.
He congratulated me on the good EMG results and checked me out, he said my breathing was fine, my throat was fine and that the little ridge on the end of my tongue was probably due to me grinding it against my teeth. He saw no need for me to see a Pulmo.
He did start talking about how stress can cause the body to do so many things and that once my Neuro gave me a clean bill of health that we should start to think about psychological help.
Here is my issue, while the EMG looked good how do I know it was complete. why did she not do my tongue or torso? I am losing lots of weight, can that be explained by the stress.
Can stress cause joint popping that seems to be spreading to all limbs. Will I have to have a severe symptom (slurring, loss of function of a limb or clearly visible atrophy to really know for sure).
I really want to feel normal again. What shall I ask the Neuro on my next visit to review the results.
Thanks again for listening.
I had painted a picture in my mind that resulted in an ALS diagnosis. I was shaking while waiting in the doctors office.
The test began with an ECV, this is a very uncomfortable procedure lots of jumping. The test was done on my right leg and my left arm.
Then the EMG which was not as bad. This was done in my legs and arms no torso no tongue.
After the test I asked the Doc on the results. She emphatically stated that this is not ALS and that the results were normal. She did say she had a weak reading on my right foot with the ECV perhaps some kind of neuropathy.
I asked her about the equipment used, she indicated that it was the same as what she uses at Stanford and the UCSF ALS Clinic. I asked her about her experience with ALS She indicated that she works at the Stanford and UCSF clinics and did her fellowship under some ALS renowned Doctor (forgot the name).
I broke into tears and left the office feeling like I was on top of the world.
I have an appointment on Thursday to formally review the results.
That evening however I noticed my voice getting weaker again and after a big dinner my tongue started to feel strange again. When I went to bed I was finding breathing difficult, it wasn't like I had short breaths just a feeling that I was not getting enough air.
The next day I did not feel any better I still fell weak, my tongue feels strange in my mouth,
I got tired at the end of the day, so I called my PCP and he told me to come in.
He congratulated me on the good EMG results and checked me out, he said my breathing was fine, my throat was fine and that the little ridge on the end of my tongue was probably due to me grinding it against my teeth. He saw no need for me to see a Pulmo.
He did start talking about how stress can cause the body to do so many things and that once my Neuro gave me a clean bill of health that we should start to think about psychological help.
Here is my issue, while the EMG looked good how do I know it was complete. why did she not do my tongue or torso? I am losing lots of weight, can that be explained by the stress.
Can stress cause joint popping that seems to be spreading to all limbs. Will I have to have a severe symptom (slurring, loss of function of a limb or clearly visible atrophy to really know for sure).
I really want to feel normal again. What shall I ask the Neuro on my next visit to review the results.
Thanks again for listening.