Hi all you caring readers! I had my appointment yesterday at Upstate Medical Neurology. Since we all need to hear some good news about one another, I will tell you that first!
The doc said my reflexes were great! He said my weakness wasn't too bad. But, after the exam he ordered EMG, blood work and a sleep study to see fasics.
The bad news is......the whole visit was very strange. BEFORE he examined me he asked me what I was worried about. When I told him about the weakness, muscle twitching, muscle cramping, he stopped me in mid sentence and said, "I know your symptoms, now what are you worried about?" This went on twice until one of my family members stopped him, since it seemed a little weird, awkward and I didn't know what he was looking for. She asked him if I had an MND. He said, "common things are common. Rare things are rare." He jumped up, grabbed his mid section and said, "I used to be 25 pounds lighter. I have to live with this now. You don't see me obsessing over it." This was all BEFORE he examined me! I was kind of in a daze watching this man. Then he said, "you're a single mom of 3, go to school, does that cause you a lot of stress?" Oh my God! Yea it causes stress, so does the muscle twitching, weakness and cramping I told him.
He said he couldn't see any muscle twitching, so was I sure I was having it. Then he said maybe I have chronic fatigue syndrome where a virus or infection has done something.
Even though it was strange and I was disillusioned with the appt., at least he ordered the tests. He just didn't hear much of anything I said.
Please wish me the best with the EMG and hope they come up with something! If any of you have suggestions for my next appt. with him, I would really, really appreciate it. He told me he has an anxiety disorder and takes meds for it, so I am thinking that may have been why he was so hyper, jokester and not hearing me talk. He didn't reply when I told him I couldn't button a shirt. It was just weird! Thanks for any help. Leslie
The doc said my reflexes were great! He said my weakness wasn't too bad. But, after the exam he ordered EMG, blood work and a sleep study to see fasics.
The bad news is......the whole visit was very strange. BEFORE he examined me he asked me what I was worried about. When I told him about the weakness, muscle twitching, muscle cramping, he stopped me in mid sentence and said, "I know your symptoms, now what are you worried about?" This went on twice until one of my family members stopped him, since it seemed a little weird, awkward and I didn't know what he was looking for. She asked him if I had an MND. He said, "common things are common. Rare things are rare." He jumped up, grabbed his mid section and said, "I used to be 25 pounds lighter. I have to live with this now. You don't see me obsessing over it." This was all BEFORE he examined me! I was kind of in a daze watching this man. Then he said, "you're a single mom of 3, go to school, does that cause you a lot of stress?" Oh my God! Yea it causes stress, so does the muscle twitching, weakness and cramping I told him.
He said he couldn't see any muscle twitching, so was I sure I was having it. Then he said maybe I have chronic fatigue syndrome where a virus or infection has done something.
Even though it was strange and I was disillusioned with the appt., at least he ordered the tests. He just didn't hear much of anything I said.
Please wish me the best with the EMG and hope they come up with something! If any of you have suggestions for my next appt. with him, I would really, really appreciate it. He told me he has an anxiety disorder and takes meds for it, so I am thinking that may have been why he was so hyper, jokester and not hearing me talk. He didn't reply when I told him I couldn't button a shirt. It was just weird! Thanks for any help. Leslie