‘Dunric, gotta say you're the first to say, "...and the adventure continues" going
down the path to a confirmed diagnosis of ALS.
Adventure?
“
Not an ”oops” Life is a incredible adventure regardless of the cards we are dealt. That’s just the way I look at it. Sorry if that seemed to offend you... ( different strokes, different folks) The crazy adventures I went through to get a definitive diagnosis are long and ongoing, I just can’t recall them all in memory. (Just visited my neurologist yesterday in fact...)
“On your first post you wrote you have been a "long time lurker"... I'm sure
you have seen numerous posts where EMG reports were posted with
identifying info blacked out.”
I used to carry a physical copy of my records and that continued till I ended up in a care home where they pretty much assimilated my records like the Borg and never gave them back. What happened to them you might ask? Your idea is as good as mine. It’s all digital these days and I’m used to physical copies and think only a back woods hospital would still use a paper mill. (lost my train of thought)
‘But... you don't have a copy of your EMG. Just a suggestion.... most PALS
do have a copy for many purposes. Something you might consider obtaining.”
This is something I can try and work on, again, I’m sorry this displeases you but then again, is this a forum or is this becoming a debate? Would you like to talk to my doctor?
...
“Like Nikki wrote.... "22 years from diagnosis wow" No EMG reports?
Then...
"it’s been many years and amazed that I’ve held out this long but if
Steven Hawking lived long with ALS."
22 years into it... Steven Hawking was nearly incapacitated.”
I’m not exactly doing backflips either...
“So, don't be offended to questions and comments. Your case is very
very unique to say the least.”
I understand that part, but I don’t exactly feel a warm welcome here...
Hope you get your ipad worked out... many members here work from
ipads.