Mommarowl
New member
- Joined
- Mar 30, 2023
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Hi last March I’ve had a range of weird and wonderful symptoms
Fatigue, muscle weakness, coordination problems, brain fog, swallowing problems that come and go, breathlessness when I do things, muscle spasms, muscle twitches my leg gives way balance probs.lose grip of things
I had a brain mri in august that came back clear
The gp then said must be long covid so I have been attending long covid clinic and have improved my balance somewhat tho still fall
Anyways the clinic said they believe it’s more than long covid and to go back to gp
I went back to gp and she wants an urgent referral to neurologist. Upon reading her referral letter
She noticed , my twitches, abdominal fasciculations, my hand shaking. Slight assumtreical face, my tongue deviated to right, she believes I have muscle wasting to both legs . Her letter states she is concerned I have motor neuron disease.
However I feel if it was something as serious as that I’d feel worse. I wouldn’t have days where I have less spasms and my leg gives way less ? Or is it common for this to be the case ?
I was looking at my tongue yesterday as I was curious to see what she means about deviating to one side and I noticed what I believe to be tongue fasciculations. Several times since they have been there when I’ve checked too. But not every time .
Some times it feels like my leg is heavy, I limp and drag it
Last year it was just my left that felt weak now my right leg and arm are weaker . My left leg is dragged and my right leg gives up,
Fatigue, muscle weakness, coordination problems, brain fog, swallowing problems that come and go, breathlessness when I do things, muscle spasms, muscle twitches my leg gives way balance probs.lose grip of things
I had a brain mri in august that came back clear
The gp then said must be long covid so I have been attending long covid clinic and have improved my balance somewhat tho still fall
Anyways the clinic said they believe it’s more than long covid and to go back to gp
I went back to gp and she wants an urgent referral to neurologist. Upon reading her referral letter
She noticed , my twitches, abdominal fasciculations, my hand shaking. Slight assumtreical face, my tongue deviated to right, she believes I have muscle wasting to both legs . Her letter states she is concerned I have motor neuron disease.
However I feel if it was something as serious as that I’d feel worse. I wouldn’t have days where I have less spasms and my leg gives way less ? Or is it common for this to be the case ?
I was looking at my tongue yesterday as I was curious to see what she means about deviating to one side and I noticed what I believe to be tongue fasciculations. Several times since they have been there when I’ve checked too. But not every time .
Some times it feels like my leg is heavy, I limp and drag it
Last year it was just my left that felt weak now my right leg and arm are weaker . My left leg is dragged and my right leg gives up,