alvio_ramom
Member
- Joined
- Mar 31, 2014
- Messages
- 14
- Reason
- Learn about ALS
- Country
- US
- State
- TX - Texas
- City
- Caddo Mills
I just started the process of determining whether or not I have ALS. It has been real stressful. I have read all of the sticky's. I am just looking for some reassurance from all of you that have had a family member or yourself that has or is going through this process. I have never heard of such an issue as ALS. It is truly the worst thing I have ever heard of. AIDS, Cancer, heart issues, etc....all have some medical correction available. ALS has nothing. It has a drug that could prolong your life a couple months. WOW thanks! Anyway, I am scared.
I am 42 years old. I am married w/three children. Emma, Evelyn, and Trey. Trey is three. I know that we are not promised tomorrow. I know we have to live each day as if it was our last. I know my family will be provided for if I pass. I just hoped I would get to see my children grow up. Sometimes we don't get what we want. Babies are born w/terrible diseases or parents don't take care of their kids. Anyway, sorry for being morbid.
I know this...I am available for prayer with anyone that wants it! Just IM me and we will workout the details. It is my new mission to be available for people w/inoperable cancers, ALS, etc.
OK, I know some of ya'll are going to rag on me...but I would really just appreciate the you probably don't have ALS speech . I have been praying about it and I have had others pray about it as well. So, I do have a Support Group and the I have THE Support Group, then I have ya'll Support Group.
About 1 1/2 months ago I started the famous twitch (that doesn't mean you have ALS). About a year ago I went on a diet from 220 to 185. I am at 174 at present...but not by choice. It is because I am not hungry and/or maybe nourishment is not going to my arm and leg muscles. Anyway, I did a Spartan Race about three months ago. It was a fifteen mile race up hills and down hills. I did not prepare for it and paid the price. I ended up in the hospital for dehydration and rhabdomyolysis. About three weeks after the race I started to feel better. I then had an ear infection and took Amox-Clav. Well, I found out I am allergic to Amox-Clav. I was in bed for several days and could not move. My stomach was messed up and had "white/thick" tongue. It was not fun.
Again, the twitch started about a month and half ago. It was just in my calf (I thought). I made an appointment w/the neurologist thinking I had fasciculations and just needed to verify that is all they were. He did not send me for an EMG. He sent me for an EEG. I go Wednesday for the results of the EEG. He also did blood test for Thyroid, Electrolytes, and something else.
This is what is tripping me out. He did the strength test and studied the twitch on my left calf. He asked me if I had any other issues. I just told him that my calf felt tight. He asked if I had any other twitches. I told him "no". Yesterday, I felt something funny on my feet. I took both my socks off and there was twitches in both feet, the other calf and the original calf and my right arm. You talk about getting attacked. I felt bombarded. Minus all of that I "feel" like I don't have a lot of energy. I "feel" like I want to stay in bed. I don't do that because I have a job and a family that I need to take care of. I also "feel" like I have "thick tongue". I feels like it takes up a lot of room in my mouth.
Any constructive criticism if welcomed. Thank you for your time and concern. Again, I am willing to assist anyone that needs anything.
Sincerely,
Al
I am 42 years old. I am married w/three children. Emma, Evelyn, and Trey. Trey is three. I know that we are not promised tomorrow. I know we have to live each day as if it was our last. I know my family will be provided for if I pass. I just hoped I would get to see my children grow up. Sometimes we don't get what we want. Babies are born w/terrible diseases or parents don't take care of their kids. Anyway, sorry for being morbid.
I know this...I am available for prayer with anyone that wants it! Just IM me and we will workout the details. It is my new mission to be available for people w/inoperable cancers, ALS, etc.
OK, I know some of ya'll are going to rag on me...but I would really just appreciate the you probably don't have ALS speech . I have been praying about it and I have had others pray about it as well. So, I do have a Support Group and the I have THE Support Group, then I have ya'll Support Group.
About 1 1/2 months ago I started the famous twitch (that doesn't mean you have ALS). About a year ago I went on a diet from 220 to 185. I am at 174 at present...but not by choice. It is because I am not hungry and/or maybe nourishment is not going to my arm and leg muscles. Anyway, I did a Spartan Race about three months ago. It was a fifteen mile race up hills and down hills. I did not prepare for it and paid the price. I ended up in the hospital for dehydration and rhabdomyolysis. About three weeks after the race I started to feel better. I then had an ear infection and took Amox-Clav. Well, I found out I am allergic to Amox-Clav. I was in bed for several days and could not move. My stomach was messed up and had "white/thick" tongue. It was not fun.
Again, the twitch started about a month and half ago. It was just in my calf (I thought). I made an appointment w/the neurologist thinking I had fasciculations and just needed to verify that is all they were. He did not send me for an EMG. He sent me for an EEG. I go Wednesday for the results of the EEG. He also did blood test for Thyroid, Electrolytes, and something else.
This is what is tripping me out. He did the strength test and studied the twitch on my left calf. He asked me if I had any other issues. I just told him that my calf felt tight. He asked if I had any other twitches. I told him "no". Yesterday, I felt something funny on my feet. I took both my socks off and there was twitches in both feet, the other calf and the original calf and my right arm. You talk about getting attacked. I felt bombarded. Minus all of that I "feel" like I don't have a lot of energy. I "feel" like I want to stay in bed. I don't do that because I have a job and a family that I need to take care of. I also "feel" like I have "thick tongue". I feels like it takes up a lot of room in my mouth.
Any constructive criticism if welcomed. Thank you for your time and concern. Again, I am willing to assist anyone that needs anything.
Sincerely,
Al