SpeedyMarie
Active member
- Joined
- May 24, 2019
- Messages
- 38
- Reason
- PALS
- Diagnosis
- 08/2019
- Country
- US
- State
- TX
- City
- Houston
Hello all,
I was diagnosed in August of this year and have been having symptoms for probably a year before. In my career due to my illness I just can’t do it anymore. Being a nurse the physical demands and my hand and arm weakness was making it difficult doing simple procedures. Fear of losing my benefits (job)and the out and out extreme fatigue, I went to my PCP. He recommended doing out on disability. 25 years as a nurse ....end of a career. Sucks and has been emotional but I have peace. I would never want to hurt someone. My family and friends need me and damn it I’m going to do my art while I still can -so life will open in a different way.
I swear dealing with doctor offices and tracking forms, insurance policies and paying for forms to be filled out wow. I’m starting a spreadsheet. I have a meeting with my lawyer for estate planning and will today. Next month I’ll be eligible to apply for Medicare and SSI. Hopefully in a few months my insurance through Medicare will allow me to go to an ALS Clinic. I’ve heard stories from various times being in health care how bad is the Compassionate SSI process?
I was diagnosed in August of this year and have been having symptoms for probably a year before. In my career due to my illness I just can’t do it anymore. Being a nurse the physical demands and my hand and arm weakness was making it difficult doing simple procedures. Fear of losing my benefits (job)and the out and out extreme fatigue, I went to my PCP. He recommended doing out on disability. 25 years as a nurse ....end of a career. Sucks and has been emotional but I have peace. I would never want to hurt someone. My family and friends need me and damn it I’m going to do my art while I still can -so life will open in a different way.
I swear dealing with doctor offices and tracking forms, insurance policies and paying for forms to be filled out wow. I’m starting a spreadsheet. I have a meeting with my lawyer for estate planning and will today. Next month I’ll be eligible to apply for Medicare and SSI. Hopefully in a few months my insurance through Medicare will allow me to go to an ALS Clinic. I’ve heard stories from various times being in health care how bad is the Compassionate SSI process?