GoingCrazy
New member
- Joined
- Sep 16, 2014
- Messages
- 7
- Reason
- Other
- Country
- NL
- State
- Noord-Holland
- City
- A'dam
Hello all,
I just want to tell my story, to clear my heart, because further I can't tell anyone.
My girlfriend have some weird things going one, but I have not told her that I think of A.L.S.
I’m going insane! My girlfriend has always been very sensitive and therefore I don’t want to discuss this with her.
I’m from the netherlands btw, so sorry for my bad english!
In january:
She gets a new job, have to write a lot, getting more and more pain in her thumb.
In the morning her thumb is stiff and she can barely move him.
When she did’t write a couple of days it goes better.
in may:
She gets joint pain, in her knees, arms, wrist. The joints are very stiff.
End of July:
She comes home from work and can barely walk, has pain in bones and joints.
She has tingling in feet, sometimes a sort of nerve pain she said.
One of her legs has 7 years ago been broken in several places. This leg does most pain.
And then it suddenly goes fast! In one week:
She has trouble with talking, it’s different than normal.
Her whole body was weak and she can not hold herself upright.
She can not walk, her leg is in pain, muscles are hard and stiff.
When she goes upstairs or goes from standing to sitting, her muscles began to quiver in her legs.
We going to the docters many times! First they took it not serious > burn out!
Blood tests said: vitamine D & vitamine b12 lack.
Couple days later: She talks & walk like she’s drunk, the docters checks her reflexes > her reflexes are higher.
They send her to a neurologist.
Aug / sept:
Her loading doses for both is done, now she have it for supplementing.
It goes a little bit better, but not good! walking goes better, talking a little bit better, less weakness in arms and legs.
She starts to lose weight. She gets a MRI scan for brain and spinal cord, she have white spots in her brain,
the neuro said: it’s a little bit different than MS, we also see this with strokes? (I don’t know how you call it)
but you don’t have a stroke because you are 34 years, too young!
but sometimes we see it also with b12 lack so keep doing b12 because we don’t have a diagnosis yet.
She needs to go back in okt to have an EMG and also another test (forget the name of it).
She was 59 kg, now she is 54, 5 kg in one month! she’s very thin.
Now I am afraid if it is a.l.s. I’m going insane! Her reflexes are highh! :/
She’s weak and the docters said that! She’s so skinny now.
Her face looks diferent, one cheek looks like it’s a little bit sunk in, or her jaw or someting?
its a little bit! She don’t know it! But i see it when I look at her, and if she talks her mouth on that side looks different.
I'm afraid she have atrophy in her cheek or something, I don't know! I know I need to relax!
Sorry, I don't wanna waste your time but I can't talk with anyone in my area. Thanks for listening!
I just want to tell my story, to clear my heart, because further I can't tell anyone.
My girlfriend have some weird things going one, but I have not told her that I think of A.L.S.
I’m going insane! My girlfriend has always been very sensitive and therefore I don’t want to discuss this with her.
I’m from the netherlands btw, so sorry for my bad english!
In january:
She gets a new job, have to write a lot, getting more and more pain in her thumb.
In the morning her thumb is stiff and she can barely move him.
When she did’t write a couple of days it goes better.
in may:
She gets joint pain, in her knees, arms, wrist. The joints are very stiff.
End of July:
She comes home from work and can barely walk, has pain in bones and joints.
She has tingling in feet, sometimes a sort of nerve pain she said.
One of her legs has 7 years ago been broken in several places. This leg does most pain.
And then it suddenly goes fast! In one week:
She has trouble with talking, it’s different than normal.
Her whole body was weak and she can not hold herself upright.
She can not walk, her leg is in pain, muscles are hard and stiff.
When she goes upstairs or goes from standing to sitting, her muscles began to quiver in her legs.
We going to the docters many times! First they took it not serious > burn out!
Blood tests said: vitamine D & vitamine b12 lack.
Couple days later: She talks & walk like she’s drunk, the docters checks her reflexes > her reflexes are higher.
They send her to a neurologist.
Aug / sept:
Her loading doses for both is done, now she have it for supplementing.
It goes a little bit better, but not good! walking goes better, talking a little bit better, less weakness in arms and legs.
She starts to lose weight. She gets a MRI scan for brain and spinal cord, she have white spots in her brain,
the neuro said: it’s a little bit different than MS, we also see this with strokes? (I don’t know how you call it)
but you don’t have a stroke because you are 34 years, too young!
but sometimes we see it also with b12 lack so keep doing b12 because we don’t have a diagnosis yet.
She needs to go back in okt to have an EMG and also another test (forget the name of it).
She was 59 kg, now she is 54, 5 kg in one month! she’s very thin.
Now I am afraid if it is a.l.s. I’m going insane! Her reflexes are highh! :/
She’s weak and the docters said that! She’s so skinny now.
Her face looks diferent, one cheek looks like it’s a little bit sunk in, or her jaw or someting?
its a little bit! She don’t know it! But i see it when I look at her, and if she talks her mouth on that side looks different.
I'm afraid she have atrophy in her cheek or something, I don't know! I know I need to relax!
Sorry, I don't wanna waste your time but I can't talk with anyone in my area. Thanks for listening!
