Hi again,
My husband has initial diagnosis of ALS (actually revised to progressive bulbar palsy, with likelyhood to progress to ALS within 1 year because of a normal EMG).
Ths local ALS Association support group has monthly meetings. This month's meeting is the day after tomorrow.
I feel as if it would be beneficial for us to go (it is for PALS, friends & families), but am wondering if it seems premature to go?
We are still awaiting outcome of some of the "rule out other diseases" tests. I don't want to barge in on this (clearly) close knit group, but feel like we would like to gather as much info on everything possible. Also, I think it would be good to be able to speak freely about what's happening as we have not told any of our local friends about what's happening (only have told family, who are all far away).
What do you all think?
Thanks,
COlisa
My husband has initial diagnosis of ALS (actually revised to progressive bulbar palsy, with likelyhood to progress to ALS within 1 year because of a normal EMG).
Ths local ALS Association support group has monthly meetings. This month's meeting is the day after tomorrow.
I feel as if it would be beneficial for us to go (it is for PALS, friends & families), but am wondering if it seems premature to go?
We are still awaiting outcome of some of the "rule out other diseases" tests. I don't want to barge in on this (clearly) close knit group, but feel like we would like to gather as much info on everything possible. Also, I think it would be good to be able to speak freely about what's happening as we have not told any of our local friends about what's happening (only have told family, who are all far away).
What do you all think?
Thanks,
COlisa