joelc
Moderator emeritus
- Joined
- Jul 15, 2006
- Messages
- 2,835
- Reason
- PALS
- Diagnosis
- 09/2005
- Country
- CA
- State
- BC
- City
- Abbotsford
I have taken Glutathione with a good degree of success. I would like to hear from other PALS that have tried it, or had some experience with it.
I have been told over & over that there is NO help or treatment for ALS. But, I am not willing to accept this - there HAS to be something that will cure ALS, we just have not found it yet! There seems to be a very alarming attitude to discount any treatment that is outside the Medical Norm. The neurologist that diagnosed me would not consider the fact there could be something out there. My extreme fear is that one day someone is going to come up with a cure and it will be ignored or tossed away because it did not come from the right source.
Here is my story;
My symptoms started in Dec 2004 or Jan 2005.
I was noticing some weakness in my left hand and some dexterity issues. I kept looking for a reason throughout the first half of last year. I was hoping it was just a pinched nerve in my spine. By summer (6 months after 1st symptom) I was starting to have severe trouble with my right hand as well. (left>right) It was getting very uncomfortable not knowing what was going on. It took a while to convince my MD that it was more than stress causing this. Finally Aug 9th I saw a neurologist and was told I had ALS. Throughout August and early September things were getting worse. Another neurologist at the ALS centre in Vancouver verified the diagnosis. They tracked how fast I was declining and told me to go home, get my affairs in order as I would be dead within 2 years. They said "There is nothing we can do for you." NICE!
I went to a Naturopath, who had a good reputation for helping people, and we discussed my situation. He had a few things that would slow it down, but also re-enforced the fact there is no cure. I came back home to adjust to this news and try to come to grips with my imminent death. By the end of September I could not dress myself as my hands had deteriorated to that degree. I was getting extremely concerned. Went back to see the Naturopath, he had just gotten back from a fact-finding excursion and had a deep smile on his face. Long story short.....he corresponded with some colleagues in Germany. They had started experimenting with Glutathione about 6 months previous and said that in ALL their patients the progression stopped - it is NOT a cure, but it did stop the progression. He brought some glutathione back with him and I had my first injection. I learned how to do an IV, we ordered some glutathione and started the treatment daily.
My condition actually improved over the next month. I was once again able to do the buttons up on my shirt and do my pants up! I could even pick up a pen and write again. PRAISE GOD!
It stabilized right there and held until I developed an allergy to the medication in March (this year). After consulting with the naturopath it was decided that I should go off it for awhile. After 2 weeks my hands got much worse so I pushed for my next appointment date. I was off for 3 weeks in total. He de-sensitized me to the glutathione and I went right back on it! Also, my liver was overloaded with toxins and needed some help to flush the toxins glutathione was ridding my system of. Because it is such a powerful de-toxifier, as well as an anti-oxident, you need to pay attention (in the early stages) until the bulk of toxins are flushed. I will NEVER be off Glutathione again, I lost a lot of ground and it did not come back this time, but is holding again. My liver is fine now as well.
It was good to be off the Glutathione for time as it definitely confirmed whether it was working for me or not - THERE IS NO DOUBT - IT WORKS!
I do an "IV Push" of 7ml daily.
I get the glutathione from my Naturopath. Some drug stores also have labs that can mix this up. I prefer to buy my medication from the naturopath as he can check me for sensitivity to each bottle before I purchase it. I am not taking any more chances!
I am also taking Carbonylgruppen to help with muscle cramping. It is also helping.
I welcome your comments, questions and experiences. I have found this to work extremely well for me and have proved it to myself by discontinuing it's use for a time.
We are all in this fight together - I share this in the hopes it can help others as it has helped me.
God Bless us all as we seek to find help - together we can beat this.
Joel
I have been told over & over that there is NO help or treatment for ALS. But, I am not willing to accept this - there HAS to be something that will cure ALS, we just have not found it yet! There seems to be a very alarming attitude to discount any treatment that is outside the Medical Norm. The neurologist that diagnosed me would not consider the fact there could be something out there. My extreme fear is that one day someone is going to come up with a cure and it will be ignored or tossed away because it did not come from the right source.
Here is my story;
My symptoms started in Dec 2004 or Jan 2005.
I was noticing some weakness in my left hand and some dexterity issues. I kept looking for a reason throughout the first half of last year. I was hoping it was just a pinched nerve in my spine. By summer (6 months after 1st symptom) I was starting to have severe trouble with my right hand as well. (left>right) It was getting very uncomfortable not knowing what was going on. It took a while to convince my MD that it was more than stress causing this. Finally Aug 9th I saw a neurologist and was told I had ALS. Throughout August and early September things were getting worse. Another neurologist at the ALS centre in Vancouver verified the diagnosis. They tracked how fast I was declining and told me to go home, get my affairs in order as I would be dead within 2 years. They said "There is nothing we can do for you." NICE!
I went to a Naturopath, who had a good reputation for helping people, and we discussed my situation. He had a few things that would slow it down, but also re-enforced the fact there is no cure. I came back home to adjust to this news and try to come to grips with my imminent death. By the end of September I could not dress myself as my hands had deteriorated to that degree. I was getting extremely concerned. Went back to see the Naturopath, he had just gotten back from a fact-finding excursion and had a deep smile on his face. Long story short.....he corresponded with some colleagues in Germany. They had started experimenting with Glutathione about 6 months previous and said that in ALL their patients the progression stopped - it is NOT a cure, but it did stop the progression. He brought some glutathione back with him and I had my first injection. I learned how to do an IV, we ordered some glutathione and started the treatment daily.
My condition actually improved over the next month. I was once again able to do the buttons up on my shirt and do my pants up! I could even pick up a pen and write again. PRAISE GOD!
It stabilized right there and held until I developed an allergy to the medication in March (this year). After consulting with the naturopath it was decided that I should go off it for awhile. After 2 weeks my hands got much worse so I pushed for my next appointment date. I was off for 3 weeks in total. He de-sensitized me to the glutathione and I went right back on it! Also, my liver was overloaded with toxins and needed some help to flush the toxins glutathione was ridding my system of. Because it is such a powerful de-toxifier, as well as an anti-oxident, you need to pay attention (in the early stages) until the bulk of toxins are flushed. I will NEVER be off Glutathione again, I lost a lot of ground and it did not come back this time, but is holding again. My liver is fine now as well.
It was good to be off the Glutathione for time as it definitely confirmed whether it was working for me or not - THERE IS NO DOUBT - IT WORKS!
I do an "IV Push" of 7ml daily.
I get the glutathione from my Naturopath. Some drug stores also have labs that can mix this up. I prefer to buy my medication from the naturopath as he can check me for sensitivity to each bottle before I purchase it. I am not taking any more chances!
I am also taking Carbonylgruppen to help with muscle cramping. It is also helping.
I welcome your comments, questions and experiences. I have found this to work extremely well for me and have proved it to myself by discontinuing it's use for a time.
We are all in this fight together - I share this in the hopes it can help others as it has helped me.
God Bless us all as we seek to find help - together we can beat this.
Joel
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