I am 59 and was also diagnosed in August and I see the string is titled "Giving up Hope".
I have had fasciculations since April 2021. However had an EMG on 1 August, and was diagnosed with a Motor neuron disease. They won't say it is for sure ALS at this point, to rule out other things.
As of this writing both arms have gotten weaker and smaller, and my hands have gotten smaller and are very weak. Also I have lost the ability to take deep breaths and the automatic breathing that you do when you sleep has been compromised. I recently went about 10 days without very little sleep. However I got a BIPAP machine two days ago and it is now helping me to breathe at night.
I won't talk about what gets me through every day and gives me hope since it seems to be triggering and against forum rules, but you can check out what gives me hope in my post in the Off Topic/Religion Forum if anyone wants to check it out.
And yes ALS does suck, and while I am saddened, about what is happening to my body, and what I am loosing, and the impact it has on my family....even with all that, I still have hope.
I mean I am going to an ALS Clinic, getting the pills, and also getting things going with the VA, so I do have hope that my time and functions will remain longer, but my real hope is something else.