II'm not familiar with Canada. Other people are. But I have two questions for you that might make a difference.
1. Give us some details WHY your neuro is concerned. What symptoms do you have? Is your walking, talking, or buttoning your shirt affected?
2. If, tomorrow, you were proved to have ALS, what would you do with the information? Would you live life differently if you had an expiration date?
I have the following:
• Muscle wasting in legs, arms and small muscles of the hands.
• Leg cramps.
• No obvious ALS muscle twitches, but I understand this is not compulsory.
• Very poor balance (would fail roadside sobriety test every time). Terrible balance in poor lighting.
• Foot drop in both feet.
• I fall often.
• Muscle weakness in legs, feet and hands.
• No ability to button a shirt.
• I need a cane to walk on anything but a perfectly flat surface.
• I need to sit down every 200 yards walking - leg muscles tired.
• Tired most of the time.
• Neuropathy in lower legs and hands, but that could be diabetes I suppose, but it has come on very quickly in the hands.
A few of these could be diabetes related but the symptoms happen on both sides of the body at the same time, which would be unusual for diabetes. I saw my diabetes specialist two weeks ago after not seeing her for a while. She watched me get out of my chair. She said "You have a neurological disease. Is it MS or ALS?" She does not pull her punches. I like that.
I would definitely live differently if I knew. There are a couple of things I would want to do before I lose mobility, and I would want to see my family in the UK. Critical illness insurance will fund this if and when I am diagnosed.
Bob