Things are going great so far! The only pain he has is when he coughs and he slept great (10 hours!) last night. This morning, he did a feeding of formula and one with a pureed oatmeal/cereal/milk mix. And he seems really happy to have the tube! I'm so thrilled that it is going smoothly and he seems so much happier and less stressed out. So far the tube gets 2 big thumbs up!
Any tips for taking medications? He has a pill crusher because he takes some things crushed up in yogurt (by mouth). And I've ordered a mortar and pestle. Is it best to dissolve them in water? Milk? Juice? The papers they sent us home with said to do one medication at a time, so we are doing that.
we mix my meds with water (20-30 ml). I used to do them individually but now we mix them together. we have gotten by with a pretty cheap plastic pill crusher, and some dissolve in water in ten minutes or so. If you are pushing meds with a syringe and encounter a blockage, don't push harder but instead pull back on the stopper and push again. Do this until it goes smoothly. Don't force anything through.
Nona, thanks for the tip! I think we aren't waiting long enough for the meds to dissolve. We will be more patient! And thanks for the tip about how to deal with a blockage. My husband tends to brut force things, so good to know it is better to pull back and then push again.
My husband weighed himself last night and he has gained 3 pounds in 2 days (since the night before his procedure)! I'm guessing most of that is water weight. He must have been so dehydrated all the time! He is also in a much better mood and so much more engaged in everything.
Looking back, I should have been more patient with him in the last 6 months, since he was clearly hungry and thirsty all the time, which must have been awful. But I was so annoyed (and stressed) that he wouldn't get the tube when he obviously needed it, so it was hard to sympathize with him. I'm so glad we are in a much better situation now with the tube.
Robin, you should check with his primary care provider at the VA for liquid versions of his medications. The VA provides me with liquid Ibuprofen, liquid Vitamin C, and Liquid Vitamin E. They also provided the liquid version of Riluzole, TIGLUTIK, until I stopped taking it. Sure makes life easier.