jamorel
Distinguished member
- Joined
- Jan 9, 2010
- Messages
- 193
- Country
- CA
- State
- Alberta
- City
- Calgary
I have been working on several projects and I want to ask for your input as well as your help. I want to put a face to ALS... and not one of a 1930's baseball player. I have been pondering on the challenge of getting people's attention and understanding of ALS and one thing that occurs to me is that too few know about the people who have ALS. the acronym itself "ALS" is empty and sterile, while "Lou Gehrigs" means very little to most people who are not familiar with the sports hero.
ALS has not evolved to a level where people understand that it is not a rare disease, but a disease that is as prevelant as MS. In my experience, no one outside of those affected by ALS, seem to know it, never mind understand it. I want to try to change that.
I want to try to put a face to ALS and I am looking for people, those with ALS and caregivers, who are willing to share a little information with me and as many people as I can reach.
I wish to post a profile either every few days or every week, what ever works best, of a person who is affected by ALS; whether you are a caregiver or have ALS, and give a snapshot of your life. I would like to include a photo, (either before ALS or after or both: completely up to you), so that people who read the profile will see a person, just like themselves, who is living with this disease.
The questions I would like to have answered on the profile are short and to the point:
First Name
Where I am from
My favourite hobbies/activities before ALS
What I am most thankful for
What I miss most
What gives me hope
and finally, a photo.
If you have any suggestions, please send them my way and if you would like to be profiled, please email me the above and a photo. I will include my email: [email protected]
Jodi
ALS has not evolved to a level where people understand that it is not a rare disease, but a disease that is as prevelant as MS. In my experience, no one outside of those affected by ALS, seem to know it, never mind understand it. I want to try to change that.
I want to try to put a face to ALS and I am looking for people, those with ALS and caregivers, who are willing to share a little information with me and as many people as I can reach.
I wish to post a profile either every few days or every week, what ever works best, of a person who is affected by ALS; whether you are a caregiver or have ALS, and give a snapshot of your life. I would like to include a photo, (either before ALS or after or both: completely up to you), so that people who read the profile will see a person, just like themselves, who is living with this disease.
The questions I would like to have answered on the profile are short and to the point:
First Name
Where I am from
My favourite hobbies/activities before ALS
What I am most thankful for
What I miss most
What gives me hope
and finally, a photo.
If you have any suggestions, please send them my way and if you would like to be profiled, please email me the above and a photo. I will include my email: [email protected]
Jodi
