- Apr 27, 2019
- Lost a loved one
Hi there- My grandmother had ALS when she was 73. It seemed to have manifested after her Whipple Procedure for a bile duct tumor. Not sure if there was a correlation there or not. Her ALS doctor mentioned something about trauma, etc. I was wondering if I should be genetically tested. Another thing I should mention is that her mom had Parkinson's Disease. She lived about 20-25 years with it. I read that there are more people with sporadic ALS that have some sort of genetic link than previously reported. I developed small fiber neuropathy 5 years ago due to an antibiotic which have some similar symptoms to ALS except weakness. I hate thinking that everything I experience with SFN "could be" ALS. Maybe I am just trying to calm my mind, Thoughts on genetic testing?