anitadeanne
Member
- Joined
- Nov 9, 2015
- Messages
- 13
- Reason
- Other
- Country
- CA
- State
- Ontario
- City
- Windsor
So I am very scared... It was last year this month I started experiencing neurological symptoms. They only lasted a few days and returned January 5th to be exact. I went to the hospital because my mouth was going off in shocks and my whole body went numb and tingling after I saw my massage therapist. I saw a neurologist and he was running tests on me for MS. My MRI came back normal. I would go through spurts of a lot of pain. my legs felt like I was running a marathon for days and anything in my hands felt extremely heavy. Then suddenly it would stop then come back again. Doctors tell me I need to go to the gym because they think I may be out of shape. However I do not have the strength I use to and that is why I do not go. I had an EMG and Nerve Conduction test on my arms and legs in April. Everything appeared normal. Throughout the summer the pain I felt in my arms and legs went away however my twitching got worse and since then is all over my body including within the last few weeks my face. When I wake up in the morning the first thing I feel is my twitching.
Now that winter is coming and it is getting a lot colder my body aches and my muscles feel stiff. Every morning I wake up I do not know how to describe it but rather feeling drunk. Then throughout the day I regain my strength. The thought of possibly having ALS stopped crossing my mind within the last few months until this past Friday. I have been having trouble swallowing for awhile. I would say 3 years but it got worse last winter along with most recently. Food sometimes sits at the top of my tongue that I have to scrape off. I had a gastroscope Friday and because of the results I am back in fear. He said that my swallowing muscles appear "sloppy". He then proceeded to ask me if I had been experiencing neurological symptoms (since I was there for trouble swallowing and stomach issues). He then said that this is neuromuscular related and would be testing me for Myasthenia Gravis. However when he said that he was not aware of my past symptoms. Since this appointment I noticed my mouth tremors when I try to open it. I am very scared. It seems as if I am just a few steps away at this point from a diagnosis.
Now that winter is coming and it is getting a lot colder my body aches and my muscles feel stiff. Every morning I wake up I do not know how to describe it but rather feeling drunk. Then throughout the day I regain my strength. The thought of possibly having ALS stopped crossing my mind within the last few months until this past Friday. I have been having trouble swallowing for awhile. I would say 3 years but it got worse last winter along with most recently. Food sometimes sits at the top of my tongue that I have to scrape off. I had a gastroscope Friday and because of the results I am back in fear. He said that my swallowing muscles appear "sloppy". He then proceeded to ask me if I had been experiencing neurological symptoms (since I was there for trouble swallowing and stomach issues). He then said that this is neuromuscular related and would be testing me for Myasthenia Gravis. However when he said that he was not aware of my past symptoms. Since this appointment I noticed my mouth tremors when I try to open it. I am very scared. It seems as if I am just a few steps away at this point from a diagnosis.