Cherise77
Active member
- Joined
- Jun 18, 2018
- Messages
- 72
- Reason
- Loved one DX
- Diagnosis
- 07/2018
- Country
- CA
- State
- BC
- City
- Vancouver
Hi everyone. I hope you're all staying safe during these uncertain times. I had a question regarding my Dad's recent visit to his respirologist and FVC test.
His numbers standing have dropped from 66% 6 months ago to 62% but his laying down numbers have gone from 38% 6 months ago to 32%. My question is the 30% spread between standing and laying down normal? What does it mean?
The respirologist is talking to him now about a feeding tube which he is very upset about. His only weakness after three years of symptoms is still his right hand and arm this is worrying us that it's jumped to his lungs before the other limbs. I guess just not what we were expecting and it's scary. Have any other pALS or cALS on here had this same experience with progression?
Thanks for any advice you can provide. We appreciate this forums support and guidance during these last couple years.
His numbers standing have dropped from 66% 6 months ago to 62% but his laying down numbers have gone from 38% 6 months ago to 32%. My question is the 30% spread between standing and laying down normal? What does it mean?
The respirologist is talking to him now about a feeding tube which he is very upset about. His only weakness after three years of symptoms is still his right hand and arm this is worrying us that it's jumped to his lungs before the other limbs. I guess just not what we were expecting and it's scary. Have any other pALS or cALS on here had this same experience with progression?
Thanks for any advice you can provide. We appreciate this forums support and guidance during these last couple years.