cheryilyn
Active member
- Joined
- May 22, 2007
- Messages
- 62
- Reason
- PALS
- Diagnosis
- Sept. 06
- Country
- US
- State
- Oregon
- City
- Salem
My fvc has went from 36 before diagnosed to 58 shortly after diagnosed (started bipap and stopped smoking) Now it is very low about 18 3 months ago. I am still only using bipap at night and breathing seems fine. M y question is about the test, I have felt all along that the test is not valid because my mouth does not work right. I do not get headaches and my oxygen level is in high 90's. any thoughts on this?