Atate651
New member
- Joined
- Aug 15, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
(thread closed user banned for multi-id)
FIrst off, I am no expert. Im not diagnosed with ALS. I am however a 32 year old that has been experiencing very strange progressive symptoms for 6 months now .
I research on the internet which is sometimes helpful... Its also sometimes confusing which is why I'm here. 6 months ago I had widespread twitching begin. The twitching is still present. Two months ago both of my calves became extremely stiff. My right forearm also became extremely stiff. I have a feeling of fatigue in my thighs and in my right arm. Theses feelings and stiffness are unrelenting and I believe are slowly but surely becoming worse. The twitching is now primarily only in my calves and right arm.
I received an emg a little over a month ago of my entire right leg, my right arm, right hand, and my tongue and the EMG was CLEAR! amazing! I was very grateful. However the symptoms maintained & spread. So an additional emg was performed a few days ago (by a different neurologist ) in my left leg along with my right arm...the EMG was CLEAR! Yes, I am grateful. I have also has a CK (creatine test) normal. MRI normal. There has been no weakness detected in the physical neurological exams performed by the doctor.
so why the hell are you here guy?
I am making this thread because I know there are experts here in addition to people that are unfortunately living with ALS, or have a loved one with ALS. I know that there are VERY knowledgable people here. This has dominated my life, and on a few occasions I've gotten close to taking my life over the symptoms that have dominated my body and made it a prison. I feel the neurologists write off what I'm saying because I'm young. They tell me I have Somatic Symptom disorder.
I have these consuming symptoms and there's no answers. All I know that the symptoms I listed in addition to the constant twitching clearly make me afraid of ALS. I want to ask about the reliability of the EMG for the symptoms ive mentioned? Do EMGS only detect ALS when there's is weakness? Will it detect my symptoms like stiffness and the feeling of fatigue? In short I am searching for answers on if the EMG tests I had have the ability to miss things. Im trying to determine if I need to have another EMG performed in the future.
Ive asked these things of my Drs. too. However, with your back against the wall - it definitely helps to have more opinions.
Thanks for your time & I hope you guys stay up the best you can!
Andre
FIrst off, I am no expert. Im not diagnosed with ALS. I am however a 32 year old that has been experiencing very strange progressive symptoms for 6 months now .
I research on the internet which is sometimes helpful... Its also sometimes confusing which is why I'm here. 6 months ago I had widespread twitching begin. The twitching is still present. Two months ago both of my calves became extremely stiff. My right forearm also became extremely stiff. I have a feeling of fatigue in my thighs and in my right arm. Theses feelings and stiffness are unrelenting and I believe are slowly but surely becoming worse. The twitching is now primarily only in my calves and right arm.
I received an emg a little over a month ago of my entire right leg, my right arm, right hand, and my tongue and the EMG was CLEAR! amazing! I was very grateful. However the symptoms maintained & spread. So an additional emg was performed a few days ago (by a different neurologist ) in my left leg along with my right arm...the EMG was CLEAR! Yes, I am grateful. I have also has a CK (creatine test) normal. MRI normal. There has been no weakness detected in the physical neurological exams performed by the doctor.
so why the hell are you here guy?
I am making this thread because I know there are experts here in addition to people that are unfortunately living with ALS, or have a loved one with ALS. I know that there are VERY knowledgable people here. This has dominated my life, and on a few occasions I've gotten close to taking my life over the symptoms that have dominated my body and made it a prison. I feel the neurologists write off what I'm saying because I'm young. They tell me I have Somatic Symptom disorder.
I have these consuming symptoms and there's no answers. All I know that the symptoms I listed in addition to the constant twitching clearly make me afraid of ALS. I want to ask about the reliability of the EMG for the symptoms ive mentioned? Do EMGS only detect ALS when there's is weakness? Will it detect my symptoms like stiffness and the feeling of fatigue? In short I am searching for answers on if the EMG tests I had have the ability to miss things. Im trying to determine if I need to have another EMG performed in the future.
Ive asked these things of my Drs. too. However, with your back against the wall - it definitely helps to have more opinions.
Thanks for your time & I hope you guys stay up the best you can!
Andre
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