Molly90
Member
- Joined
- Sep 24, 2014
- Messages
- 20
- Reason
- CALS
- Diagnosis
- 09/2014
- Country
- UK
- State
- Cheshire
- City
- Chester
Hello to you all,
I have been reading the many posts of here for ALS/FTD and it seems that in a lot of cases the FTD follows the ALS and also a lot of people with this ALS/FTD seem to get quite bad tempered.
With my husband it is completely the other way round. I first saw signs of character change in my husband almost seven years ago, it then took a further 3 years for friends and family to begin to notice, another 3 years after that so total 6 years before he was diagnosed with dementia. A few months later he saw a Neurologist who along with his dementia plus his weight loss and muscle wasting did some more tests on him and finally diagnosed FTD with ALS, this was in September of this year. However, my husband is not bad tempered, he just gets slightly muddled at times, he has become very withdrawn over the years, finds it very difficult to concentrate on conversations etc and soon gets distracted, he is also quite unsympathetic and doesn't grasp emotions and worries, finally he has no interst in doing anything and no motivation what so ever. That briefly explains his dementia and the effects. His ALS is showing no signs of becoming any worse he is able to walk, use his hands, can talk, doesn't choke on his food the only signs he is showing at the moment is Muscle faciculations (sorry spelling) in all four limbs, marked weight loss, muscle waste and slight weakness in one hand and fingers. He also has breathing problems and by that I mean he can get breathless, and breaths rapidly taking 2 or 3 breaths to my one, he also uses his shoulders to help him breath. I am sure the diagnosis from the Neurologist is correct, but he does not seem to have the same symptoms as a lot of people with ALS/FTD. Does anyone else have or know of anyone with similar symtoms to my husbands?
I have been reading the many posts of here for ALS/FTD and it seems that in a lot of cases the FTD follows the ALS and also a lot of people with this ALS/FTD seem to get quite bad tempered.
With my husband it is completely the other way round. I first saw signs of character change in my husband almost seven years ago, it then took a further 3 years for friends and family to begin to notice, another 3 years after that so total 6 years before he was diagnosed with dementia. A few months later he saw a Neurologist who along with his dementia plus his weight loss and muscle wasting did some more tests on him and finally diagnosed FTD with ALS, this was in September of this year. However, my husband is not bad tempered, he just gets slightly muddled at times, he has become very withdrawn over the years, finds it very difficult to concentrate on conversations etc and soon gets distracted, he is also quite unsympathetic and doesn't grasp emotions and worries, finally he has no interst in doing anything and no motivation what so ever. That briefly explains his dementia and the effects. His ALS is showing no signs of becoming any worse he is able to walk, use his hands, can talk, doesn't choke on his food the only signs he is showing at the moment is Muscle faciculations (sorry spelling) in all four limbs, marked weight loss, muscle waste and slight weakness in one hand and fingers. He also has breathing problems and by that I mean he can get breathless, and breaths rapidly taking 2 or 3 breaths to my one, he also uses his shoulders to help him breath. I am sure the diagnosis from the Neurologist is correct, but he does not seem to have the same symptoms as a lot of people with ALS/FTD. Does anyone else have or know of anyone with similar symtoms to my husbands?