Jackfishem
Member
- Joined
- Dec 29, 2015
- Messages
- 22
- Reason
- Lost a loved one
- Diagnosis
- 12/2014
- Country
- US
- State
- LA
- City
- Lake Charles
Mom was diagnosed with FTD-PPA in early 2014 and ALS a couple weeks ago. She rarely speaks, but can answer yes or no questions somewhat easily.
With mom's limited verbal skills, I am concerned that I may miss things in her disease progression. Mom is in an assisted living facility and is still high functioning. She spends quite a bit of time alone, so I have to rely on information from her to determine how the disease is progressing. I've decided to put together a checklist of questions to ask her regularly. If any of you have done this already or know of a ready-made list on the web, please share.
Here are my initial thoughts for inclusion:
Do you find you have more saliva in your mouth than usual?
Are you drooling more at night?
Are you drooling during the day?
Do you have any problems turning in bed?
Do you have any problems walking?
Did you eat breakfast today?
Did you eat lunch today?
Did you eat supper today?
When you were eating or drinking, did anything go down the wrong pipe?
Did you have any trouble swallowing?
Are you having any problems breathing?
Is it harder to breathe when you are in bed?
Have you been coughing more than usual?
Any suggestions would be appreciated!
With mom's limited verbal skills, I am concerned that I may miss things in her disease progression. Mom is in an assisted living facility and is still high functioning. She spends quite a bit of time alone, so I have to rely on information from her to determine how the disease is progressing. I've decided to put together a checklist of questions to ask her regularly. If any of you have done this already or know of a ready-made list on the web, please share.
Here are my initial thoughts for inclusion:
Do you find you have more saliva in your mouth than usual?
Are you drooling more at night?
Are you drooling during the day?
Do you have any problems turning in bed?
Do you have any problems walking?
Did you eat breakfast today?
Did you eat lunch today?
Did you eat supper today?
When you were eating or drinking, did anything go down the wrong pipe?
Did you have any trouble swallowing?
Are you having any problems breathing?
Is it harder to breathe when you are in bed?
Have you been coughing more than usual?
Any suggestions would be appreciated!