mndireland
Distinguished member
- Joined
- May 17, 2008
- Messages
- 123
- Reason
- Loved one DX
- Diagnosis
- 10/2007
- Country
- IE
- State
- Ireland
- City
- Dublin
Im not sure where to start, My mom has been waiting to go back into hospital for 4 weeks now, and still they are saying the hospital is overcrowded and so there is no available beds. This is extremely frustrating, as I have to call them almost everyday about one thing or another. Her ankles are completely swollen so she cant walk too well anymore, but the main problem is the choking and breathlessness.
She has been on bi pap since July and its ok, still getting used to it. Almost everyday now we have what I call a choking attack! These have been happening for quite some time now, probably about 9 months, but they are lasting a lot longer now, sometimes for up to 10 or 12 minutes, resulting in her panicking, face changing colour, really really scary! Ive told the neuro on so many occasions and now with the massive loss of weight they say they want her in to hospital. I was told by one nurse she might get fitted with a tube but then by another that her breathing was too bad, so whats the next step after that?
If she cant have the peg, whats next? She is choking on porridge and soup now? If she cant eat these then really what can I give her? Im so frustrated by the hospital, what if it is too late for peg, and why were we not told about this before, why did they not fit it sooner? I mean this is the first Ive ever heard of this desease, so I never knew about the peg etc, isnt this for the hospital to tell us about, arent these the things that the doctors should have warned or advised us about, shouldnt we have been given the option, instead now it is too late! Sorry, im just really so annoyed right now!
Any advice on foods are very very welcome.....
She has been on bi pap since July and its ok, still getting used to it. Almost everyday now we have what I call a choking attack! These have been happening for quite some time now, probably about 9 months, but they are lasting a lot longer now, sometimes for up to 10 or 12 minutes, resulting in her panicking, face changing colour, really really scary! Ive told the neuro on so many occasions and now with the massive loss of weight they say they want her in to hospital. I was told by one nurse she might get fitted with a tube but then by another that her breathing was too bad, so whats the next step after that?
If she cant have the peg, whats next? She is choking on porridge and soup now? If she cant eat these then really what can I give her? Im so frustrated by the hospital, what if it is too late for peg, and why were we not told about this before, why did they not fit it sooner? I mean this is the first Ive ever heard of this desease, so I never knew about the peg etc, isnt this for the hospital to tell us about, arent these the things that the doctors should have warned or advised us about, shouldnt we have been given the option, instead now it is too late! Sorry, im just really so annoyed right now!
Any advice on foods are very very welcome.....