BlueEyesOhio7
Active member
- Joined
- Jun 8, 2014
- Messages
- 83
- Reason
- PALS
- Diagnosis
- 06/2014
- Country
- US
- State
- Ohio
- City
- XXXXXXXXXXX
I want to get some feedback on a problem I have.
Was diagnosed June 17, 2014. At that time I was scheduled for an appointment for follow up visit on July 17th. I was then scheduled for a follow up appointment October 7th.
I believe my disease is progressing rather fast. I have a concerns about that and wanted to see my doc earlier than October 7. I called the office, left a message, no return call. I called a week later left a message, no return call. I called again and got the nurse practitioner. I said I had some concerns and wanted to see the doc before October, she said he was in India. She told me he is frequently out of the country. I asked if I could see another doc and she put me off and said to call her next week if I was still having a problem. (might having a terminal disease be considered a problem enough and cause enough to warrant an appt? If I'm still having a problem? My “problem" will not go away next week) Apparently they have the “ALS clinic” on the 2nd and 4th Tuesdays of the month.
Is this the way it is with docs and ALS clinics? I have made an appt. with Cleveland Clinic and am going to switch docs and to a different “clinic” I am having a heck of a time getting my records to take to the new doc. This is more stressful, it seems to me, than it needs to be, no?
Lynne
Was diagnosed June 17, 2014. At that time I was scheduled for an appointment for follow up visit on July 17th. I was then scheduled for a follow up appointment October 7th.
I believe my disease is progressing rather fast. I have a concerns about that and wanted to see my doc earlier than October 7. I called the office, left a message, no return call. I called a week later left a message, no return call. I called again and got the nurse practitioner. I said I had some concerns and wanted to see the doc before October, she said he was in India. She told me he is frequently out of the country. I asked if I could see another doc and she put me off and said to call her next week if I was still having a problem. (might having a terminal disease be considered a problem enough and cause enough to warrant an appt? If I'm still having a problem? My “problem" will not go away next week) Apparently they have the “ALS clinic” on the 2nd and 4th Tuesdays of the month.
Is this the way it is with docs and ALS clinics? I have made an appt. with Cleveland Clinic and am going to switch docs and to a different “clinic” I am having a heck of a time getting my records to take to the new doc. This is more stressful, it seems to me, than it needs to be, no?
Lynne
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