Lorie
Senior member
- Joined
- May 17, 2007
- Messages
- 551
- Reason
- Loved one DX
- Country
- Uni
- State
- Alabama
- City
- Mobile
First of all I would like to Thank Leslie for encouraging me to post about myself.
March 06, I started getting muscle twitches, at first it scared me and then I decided to ignore it. Until in July I started having a numbing sensation in my left leg with odd cold sometimes sharp pains. I went to my internal doctor, she sent me to the neuro. He did EMG and NVC test. There was abnormal readings with my nerves not as much in my mucles. I have had Brain, Neck abd Back MRI. I do have (which i've know) 18 degree scoliosis. They found a bone spur in my neck and a cyst on my lower spine. So I always deal with back and neck problems before now. So anyway, the Neuro. Says in Aug. 06. Peripheral Neuropathy. He then had no answer for the muscle twithces.
When I seen him last April 07, He said Peripheral Neuropathy with BFS to double or triple my meds. Yeah Right! I wouldn't even be able to walk around. Before Tim was able to be dia. what do you think they told him? Peripheral Neuropathy/BFS. Go figure! When I went to see the Neuro. the last time in April 07. I was going to put him on the road. I wasn't looking for ALS dia. and still not, but I know something is wrong. He put me on the road first and wanted to refer me to a Scientist/Specialist that studies underlying Neuromuscular Disorders. I said I would go when I felt like it. Well guess what? This morning I called the Neuro. and had them make my appt. It will be July 13th. In the last two weeks I started having bad cramps in my Legs, this morning I was twitching real bad in my left front shoulder blade, and the cramps started running down the same area. Yesterday my toe next to my big toe on my left foot, turned totally under. I couldn't straiten it out. Also, my finger and toes sometimes jump up and own on their own. But I still get up and get around. Bound and determined. But I know something is wrong. At the same time I can't dwell on it. With everthing else I would be in the nut house. There is no familial history. Tim was born two years before me. The genetic blood test cost about $500.00. I am scared to do that, my insurance may drop me as much as I go to the Doc. I also have Menieres's Disease with Tinnitus(loud pitch sound in the ears) and Vertigo caused by the Shingles Virus in my ear. I went through four major ear surgeries in 2002. (that like to have done me in,literally) I sound like a case don't I?
[I've come along way. No stopping me now. I do not dwell on it. I take one day at a time.
Like I tell Timothy, We have to have the will to live and a good attitude!(
(I don't tell Timothy much about my problems). He don't need that. He depends on me.
I am very lucky to have a wonderful supportive husband that supports me in everything I do.
Lorie:-D
March 06, I started getting muscle twitches, at first it scared me and then I decided to ignore it. Until in July I started having a numbing sensation in my left leg with odd cold sometimes sharp pains. I went to my internal doctor, she sent me to the neuro. He did EMG and NVC test. There was abnormal readings with my nerves not as much in my mucles. I have had Brain, Neck abd Back MRI. I do have (which i've know) 18 degree scoliosis. They found a bone spur in my neck and a cyst on my lower spine. So I always deal with back and neck problems before now. So anyway, the Neuro. Says in Aug. 06. Peripheral Neuropathy. He then had no answer for the muscle twithces.
When I seen him last April 07, He said Peripheral Neuropathy with BFS to double or triple my meds. Yeah Right! I wouldn't even be able to walk around. Before Tim was able to be dia. what do you think they told him? Peripheral Neuropathy/BFS. Go figure! When I went to see the Neuro. the last time in April 07. I was going to put him on the road. I wasn't looking for ALS dia. and still not, but I know something is wrong. He put me on the road first and wanted to refer me to a Scientist/Specialist that studies underlying Neuromuscular Disorders. I said I would go when I felt like it. Well guess what? This morning I called the Neuro. and had them make my appt. It will be July 13th. In the last two weeks I started having bad cramps in my Legs, this morning I was twitching real bad in my left front shoulder blade, and the cramps started running down the same area. Yesterday my toe next to my big toe on my left foot, turned totally under. I couldn't straiten it out. Also, my finger and toes sometimes jump up and own on their own. But I still get up and get around. Bound and determined. But I know something is wrong. At the same time I can't dwell on it. With everthing else I would be in the nut house. There is no familial history. Tim was born two years before me. The genetic blood test cost about $500.00. I am scared to do that, my insurance may drop me as much as I go to the Doc. I also have Menieres's Disease with Tinnitus(loud pitch sound in the ears) and Vertigo caused by the Shingles Virus in my ear. I went through four major ear surgeries in 2002. (that like to have done me in,literally) I sound like a case don't I?
[I've come along way. No stopping me now. I do not dwell on it. I take one day at a time.
Like I tell Timothy, We have to have the will to live and a good attitude!(
(I don't tell Timothy much about my problems). He don't need that. He depends on me.
I am very lucky to have a wonderful supportive husband that supports me in everything I do.
Lorie:-D
