Hi Phil,
I think what you are doing is fantastic! Good for "Friends of Bugsy"!
The total cost is hard to estimate, some costs are covered (both Provincially and Federally) and others are not.
I have spent, on equipment and home modifications, approx $150,000. Mind you, I've had the disease for quite a while and some of those costs were recovered. BUT, I had to have the money up front. The costs were recovered after the items were purchased.
Things like wheelchairs with adaptive devices could run you in the range of $7000-$20,000. Home adaptions can also be pricey, but can be claimed as a medical expense.
Your friend Bugsy, has a tough job...he must look down the road at what he may require. This is difficult for someone newly diagnoseded. You, as his friends may have to help him. He may need cieling track lifts, bathtub lifts, wheelchairs, walkers, ramps, wider doorways, a different vehicle with a ramp, electric bed, etc etc. It's a helluva lot to take in...
The ALS Society can help you guys identify some needs for Bugsy. Just don't overwhelm him with decisions at this stage. If he's like me, it took a while for the diagnosed to sink in. But stay ready with answers and keep up on types of equipment.
What you folks are doing will certainly benefit Bugsy! He's got some good friends!
Cheers!