Fresh Start ...Hopefully

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Healthy1

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Joined
Jul 14, 2012
Messages
24
Reason
Learn about ALS
Country
CA
State
Ontario
I would like to begin by offering my sincere apologies to everyone on this forum, especially Sadiemae, Ottawagirl, Cgars, and Wright. I began by posting as Healthy1 and then as Rocks in efforts to get as much of your perspective as possible in order to help alleviate my fear and panic about als. Panic and fear can lead to irrational actions and I apologize for the trouble that I have caused. This has really taken a grip on me and today I took your advice and sought support to help with this tremendous health anxiety that I am experienciing. I met with an intake nurse today and have an appt with a psychiatrist on July 31.

You know my story...3 Gps, 2 neuros, one clean emg following tingling and loss of dexterity in hands. All say that I don't have ALS. The emg was one week ago. It was only on two limbs and no bulbar test.

Since that time, I seem to have noticed atrophy across my whole body (chest, legs, shoulders, neck) and have become hoarse with less tongue mobility. I don't have another appt for months and hoped to gather your perspective from your knowledge and expereinces. I beleive that I see
new things each day. Can anxiety really cause this? Or does ALS move this fast?

Again, I am sorry for all of the trouble. I am working really hard on the anxiety and took your advice about professional help. I also need support in the area of physical symptoms as well and value your perspective while I wait for my next follow up. Each of you have told me that with a clean emg and 2 neuros saying I'm fine, I should try to move on. Your thoughts and perspective and PATIENCE are truly appreciated.

With the greatest of sincerity,
 

Barbie

Extremely helpful member
Joined
Dec 29, 2007
Messages
2,659
Reason
Lost a loved one
Diagnosis
01/2007
Country
US
State
FL
5 doctors said you don't have ALS. what do you want us to say--that you do? Will that make you feel better?

OMG--every Pals and Cals wishes just one dr would have said that to them.

get some therapy and move on with your life.
 

edwards5257

Distinguished member
Joined
Jul 16, 2012
Messages
159
Reason
Learn about ALS
Country
US
State
KY
I understand your fear Healthy1. I know about the anxiety also, but you still cannot get it off your mind, when symptoms persist.
Any chances of seeing an ALS specialist. I had thought I wouldn't but my neuro said he WOULD refer me if I wanted him to. I waited
a month and decided to. The referral process took two more months (I believe). Appointment is later on in July! Best to you in your concerns and fears!
 

ottawa girl

Very helpful member
Joined
Jun 14, 2012
Messages
1,506
Reason
PALS
Diagnosis
04/2012
Country
CA
State
Ontario
You are not sorry at all. In fact, you delight in this sadistic play. It makes you feel alive and part of something.

You think you have atrophy? What you have is a complete lack of empathy for the people on this forum. Most probably you have no friends in your real life. Wonder why? Because you are narcissistic and deeply troubled. You are friendless because you think you are smarter than everyone else. You are friendless because you presume you can fool all of the people all of the time.

Get off this forum - and find yourself a life - a real life. Say a prayer everyday that you will become a good person. Do some volunteer work.

And - for the record - I do not believe that you have a psych consult for July 31 - the wait lists are long and your type of anxiety gets to the bottom of the wait list. I know this because I worked in the field.
 

Healthy1

Member
Joined
Jul 14, 2012
Messages
24
Reason
Learn about ALS
Country
CA
State
Ontario
Hi OttawaGirl,

I am sorry that you cannot understand my situation and accept that I have taken responsiibilty for making poor choices on this forum. Again, I do apologize to you!

My GP put in a referral to the Prompt Care Clinic at Ontario Shores Mental Health Clinic. This is in the Whitby area. After my intake today with an RN, I will be seeing Dr. Hudson on the 31st and I look forward to the opportunity. Either my GP reailzed the urgency of this situation and put a rush on this or I got lucky... I am not sure, but feel fortunate to have the support.
All the very best to you, Ottawagirl.
 

ltbeauti

Distinguished member
Joined
Feb 22, 2011
Messages
215
Reason
PALS
Diagnosis
04/2008
Country
US
State
VA
Healthy one, fear and panic attacks can cause terrible emotional stress and I believe physical symptoms too.

Let us know how your appointment goes with the shrink. Maybe you can get some help with moving on
 

Grateful

Distinguished member
Joined
May 11, 2012
Messages
302
Reason
Learn about ALS
Country
Uk
State
Greater London
Healthy1

You haven't taken responsibility for your actions. You have lied, been caught and are now telling more lies. Ottowa girl understands your situation very well indeed; it is quite extraordinary that you can be so wholly selfish that you will have yet another go at tormenting people who are genuinely ill.

And since you refuse to accept Wright's expert opinion you are not going to be accepting a psychiatrist's expert opinion either so that you are simply wasting everyone's time...
 

Tofinodays

Active member
Joined
Aug 7, 2011
Messages
30
Diagnosis
01/2011
Country
CA
State
Ontario
Healthy1

I have some familiarity with Ontario Shores and it sounds like you have taken a very important step in seeking help for what may be your most significant health concern: anxiety and, in this case, anxiety surrounding your physical concerns. I suspect that continuing to read and post on this forum will exacerbate your anxiety as everyone here is living with or supporting loved ones who are diagnosed and living with ALS and you may think that what you are reading gives you a rational reason to fear that you have ALS. Yo
 

Tofinodays

Active member
Joined
Aug 7, 2011
Messages
30
Diagnosis
01/2011
Country
CA
State
Ontario
Oops. I hit "reply" by mistake. Depending on your age, you might find better support by calling the KidsHelpPhone.ca. While they do not provide ongoing counselling, their trained counsellors will be able to help you manage your anxiety while waiting to see the psychiatrist.
 

notgivnup

Senior member
Joined
Nov 8, 2010
Messages
815
Reason
PALS
Diagnosis
11/2010
Country
OS
State
Darkside of Moon
Dont't Worry Be happy!...NO ALS....if I were you I would be rejoicing! And moving on with my life!
 

Grateful

Distinguished member
Joined
May 11, 2012
Messages
302
Reason
Learn about ALS
Country
Uk
State
Greater London
Notgivnup

That's great advice but Rocks/Healthy1 apparently doesn't have a life, and unfortunately s/he can't apply to kidshelpphone.ca because s/he is 39 or 41 depending on which lying post you read.

And then there's a strangely similar story from someone calling themselves Muscleloss on the General discussions part of the site claiming to be a 27 year old male who declined to respond to my suggestion that s/he read the reassurances, including one from Wright, on the first Healthy1 thread.

Muscleloss has had all the tests, and they are all negative, but Muscleloss is still claiming that it must be ALS and apparently proposes to leave the country in his/her wheelchair and inject him/herself with steroids. Quite why s/he has to leave the country to do this is unexplained, just as why s/he thinks injecting steroids is going to help the ALS/MND s/he claims to have is also a mystery...
 

ottawa girl

Very helpful member
Joined
Jun 14, 2012
Messages
1,506
Reason
PALS
Diagnosis
04/2012
Country
CA
State
Ontario
Oh - and let's not forget he/she with twitches in middle finger and who lives in ass Village... methinks these are all related. Sad isn't it? As scared as I am of this horrible disease - I really and truly feel luckier than these lost souls who have nothing better to do but prey on this site. Such wasted moments in this finite experience we call life.
 

EGBAR

Distinguished member
Joined
Jun 8, 2011
Messages
171
Reason
PALS
Diagnosis
06/2011
Country
US
State
FL
Diet and Exercise, get and stay healthy if you can.

Live life.

The cure is sometimes worse than the exposure to the issue (life), Life is an adventure, Live it
 

HelenL

Very helpful member
Joined
Dec 17, 2010
Messages
1,583
Reason
PALS
Country
US
State
MA
Ok, time to stop responding to the folks who don't listen... IF you feel they're trolls, DON'T respond, just report! In the off chance that this person is SINCERE, please stop bashing them! Take it to the PM that's what it's for.

As Al used to say "play nice or get out of the sandbox"... For those of you who didn't know Al, he spent a great deal of his life moderating these conversations, and out of respect for him, and all the others who have worked so hard to make this a safe place for us all... let's be respectful to each other. Even if we THINK they're nuts, they're obviously here for a reason, maybe not the right disease, but something is wrong. Let's have some compassion people.
 

AKjo

Distinguished member
Joined
Nov 3, 2010
Messages
379
Reason
Lost a loved one
Country
US
State
Alaska
Helen, ***like***!
 
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