Well, I have to admit that I frequently have doubts about whatever is going on to the extent sometimes wondering if I'm somehow faking it. I've had five neurologists, neuromuscular specialists and neurophysiologists, two rheumatologists and my GP all examine and confirm the atrophy and weakness, let alone lack of reflexes and cramping in some locations. But all pretty much agree that it's not neurological in origin.
I know something's wrong, but I feel like such an idiot both when I'm getting by OK as well as when the lack of coordination disables me visibly in small ways. It drives me absolutely nuts.