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Follow up with doctor

Bankerman93

Member
Joined
Apr 14, 2019
Messages
10
Reason
Other
Diagnosis
00/0000
Country
US
State
MO
so ive had symptoms for 8 months now and now my doctor wants me to go back for MRI's to make sure they didn't miss anything, i don't think its looking good, i've had 8 months of symptoms but no failure yet, just breathing problems and feeling weak, and of course the twitches. I will update when i hear back


Thank you
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
2,138
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
Past threads here:
 

Bankerman93

Member
Joined
Apr 14, 2019
Messages
10
Reason
Other
Diagnosis
00/0000
Country
US
State
MO
Just an update,bailed on the neck MRI until i can get meds to go in that machine and set still for 45 mins.I spoke to my doctor and said my testosterone levels were a little low, but other then the fatigue that i have doesn't match my on going symptoms of Weakness,Twitching,excessive saliva, breathing problems, Voice changes and others.
 

Bankerman93

Member
Joined
Apr 14, 2019
Messages
10
Reason
Other
Diagnosis
00/0000
Country
US
State
MO
Had an appointment today, Doctor still wants an MRI of my neck/brain done, also he wants an Echo test done on my heart for shortness of breath. getting more concerned about ALS because all my test keep coming back normal.
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
1,950
Reason
PALS
Diagnosis
07/2017
Country
US
State
Oregon
You had a completely normal EMG back in April, so why are you worried about ALS?

Might as well find out what is wrong with you so you can fix it. But an ALS forum is not the place for you.
 

Bankerman93

Member
Joined
Apr 14, 2019
Messages
10
Reason
Other
Diagnosis
00/0000
Country
US
State
MO
Hi karen,

Thank you for the reply, i am actually a bit concerned mine is breathing onset, and i heard that type is difficulty to pick up on an emg, and with all these normal test i've had points towards it.
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
1,950
Reason
PALS
Diagnosis
07/2017
Country
US
State
Oregon
Even with respiratory onset ALS, the denervation is widespread. So it would be picked up on EMG of the limbs.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,356
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
You had normal pfts you said. They would not be normal with respiratory onset ALS. Laurie already told you that
 
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