JayMelen
New member
- Joined
- Nov 9, 2020
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Los Angeles
I was hoping not to return to this site again, thank you for being patient with me and my experience. I apologize for posting under this category a second time, I could not find where to ask a follow-up question. Based on my previous post we concluded that I am good to go and that the EMG performed at the end of Nov 2020 at Cedar Sinai was unremarkable with no abnormal findings. Since then, I sought out an independent opinion for my symptoms at UCLA neurology at the end of January 2021. The doctor who physically examined me there also stated no red flags for ALS, and likely BFS.
However since then, the arch of my left foot (same leg with the calf issues) has now started twitching much more frequently and the foot arch appears wasted and also aches. Very recently, my left shoulder and left bicep also started having what feel like twitches deep in the muscle and my left shoulder also appears to be less muscular than my right. Feels like my shoulder wants to pop out of the socket if I let it. My left foot, leg, and shoulder bicep are now always sore and feel weaker, they tire easily compared to the right side of my body.
I am scheduled to meet with the neuro muscular specialist who performed my EMG in a couple of weeks - this is what my general neurologist recommended we do next. I wanted to ask the knowledgeable people on this forum for guidance on what I should be asking the neuro specialist when I meet with him? Also, are there other conditions that you have come across on this this forum which affect only one side of the body as in my case? The diagnosis is BFS. However, this really does not feel benign to me. This month marks one year with the localized left leg calf pain and atrophy, and now the foot and shoulder/bicep seem to be following the pattern as my left my calf.
Thank you kindly.
However since then, the arch of my left foot (same leg with the calf issues) has now started twitching much more frequently and the foot arch appears wasted and also aches. Very recently, my left shoulder and left bicep also started having what feel like twitches deep in the muscle and my left shoulder also appears to be less muscular than my right. Feels like my shoulder wants to pop out of the socket if I let it. My left foot, leg, and shoulder bicep are now always sore and feel weaker, they tire easily compared to the right side of my body.
I am scheduled to meet with the neuro muscular specialist who performed my EMG in a couple of weeks - this is what my general neurologist recommended we do next. I wanted to ask the knowledgeable people on this forum for guidance on what I should be asking the neuro specialist when I meet with him? Also, are there other conditions that you have come across on this this forum which affect only one side of the body as in my case? The diagnosis is BFS. However, this really does not feel benign to me. This month marks one year with the localized left leg calf pain and atrophy, and now the foot and shoulder/bicep seem to be following the pattern as my left my calf.
Thank you kindly.
Last edited by a moderator: