ella
New member
- Joined
- Feb 16, 2007
- Messages
- 4
- Reason
- PALS
- Country
- US
- State
- California
- City
- Santa Cruz
Hi,
I am new here. So far I have no diagnosis but more and more (benign) things are being ruled out. I have had some weakness in l leg for 3 years, now also l arm, wrist and neck as well as swallowing. I saw one Neuro 3 years ago who thought I had MS but MRI's have been negative. Tensilon test for MG was also negative. There are some fascilations (spelling?) moving around, I have some every day but they don't interfere with any function. Worst is the neck weakness, I now have to wear a soft neck brace when driving to keep my head from tipping on acceleration or braking.
Swallowing is becomming more difficult chunky foods make me choke, it feels like my tongue does not move up and back on swallow. I had a fluroscopy and the base of my tongue is apparently weak. There is hyperrefflexia with clonus in my left leg, just hyper on right. I also have some atrophy, about an inch in left calf, my left hand looks sorta wrinkly, the pads are smaller.
My neuro has referred me to the local University Hospital who informed me there is a 4 month wait to go on the cancellation list. We'll call you don't call us sort of thing.
I care for my 13y.old son who is a spastic quad. The moment I mention that to any doctor they look at me and say "You must be experiencing alot of stress." No kidding- but it did not cause these symptoms! Here are my questions: Do people experience their symptoms the same all the time or do you have better/worse days. Anybody have tremor in their neck/torso- I have this little rocking type movement that occurs when I am tired. It makes me very selfconsious since it is noticable to the keen observer. What to do, where to go? Thanks
I am new here. So far I have no diagnosis but more and more (benign) things are being ruled out. I have had some weakness in l leg for 3 years, now also l arm, wrist and neck as well as swallowing. I saw one Neuro 3 years ago who thought I had MS but MRI's have been negative. Tensilon test for MG was also negative. There are some fascilations (spelling?) moving around, I have some every day but they don't interfere with any function. Worst is the neck weakness, I now have to wear a soft neck brace when driving to keep my head from tipping on acceleration or braking.
Swallowing is becomming more difficult chunky foods make me choke, it feels like my tongue does not move up and back on swallow. I had a fluroscopy and the base of my tongue is apparently weak. There is hyperrefflexia with clonus in my left leg, just hyper on right. I also have some atrophy, about an inch in left calf, my left hand looks sorta wrinkly, the pads are smaller.
My neuro has referred me to the local University Hospital who informed me there is a 4 month wait to go on the cancellation list. We'll call you don't call us sort of thing.
I care for my 13y.old son who is a spastic quad. The moment I mention that to any doctor they look at me and say "You must be experiencing alot of stress." No kidding- but it did not cause these symptoms! Here are my questions: Do people experience their symptoms the same all the time or do you have better/worse days. Anybody have tremor in their neck/torso- I have this little rocking type movement that occurs when I am tired. It makes me very selfconsious since it is noticable to the keen observer. What to do, where to go? Thanks