millymolly
New member
- Joined
- Nov 8, 2022
- Messages
- 3
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- UK
Hi everyone, I hope I can get some answers here as struggling to find them elsewhere?
My mother's onset began in 2014 when she had a procedure for carpal tunnel syndrome on her right hand through weakness and then it happened to her left hand. From 2014 to January 2020 there was a slow progression with her hands and arms getting weaker and then she found that she could no longer do her daily sit ups and had disphasia. 14th January 2020 she was finally diagnosed with MND the FAS variant. She passed in November 2021. I am very worried that I may now have the same thing as I watched my mother from onset so think I know what I am looking for. I believe that my mother's mother also had it as I remember her thinking that she may be pregnant in her 70's as she was having fasciculations in her abdomen? my mother experienced the same thing. My grandmother took her own life. I now have noticed slight atrophy in my right forearm and slight wasting of the thenar muscle but with no weakness and no fasciculations and wanted honest advice from others who know. I have seen my gp who has referred me onto nuerology but that may take time? Any advice would be greatly appreciated as hyper anxious right now. Many thanks in advance.
My mother's onset began in 2014 when she had a procedure for carpal tunnel syndrome on her right hand through weakness and then it happened to her left hand. From 2014 to January 2020 there was a slow progression with her hands and arms getting weaker and then she found that she could no longer do her daily sit ups and had disphasia. 14th January 2020 she was finally diagnosed with MND the FAS variant. She passed in November 2021. I am very worried that I may now have the same thing as I watched my mother from onset so think I know what I am looking for. I believe that my mother's mother also had it as I remember her thinking that she may be pregnant in her 70's as she was having fasciculations in her abdomen? my mother experienced the same thing. My grandmother took her own life. I now have noticed slight atrophy in my right forearm and slight wasting of the thenar muscle but with no weakness and no fasciculations and wanted honest advice from others who know. I have seen my gp who has referred me onto nuerology but that may take time? Any advice would be greatly appreciated as hyper anxious right now. Many thanks in advance.