Five year ALS Health care costs

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westjlittle

Active member
Joined
Dec 12, 2006
Messages
57
Reason
PALS
Diagnosis
October 2006
Country
US
State
CO
City
Denver
To All:

As a relatively new ALS sufferer, it would be helpful to know the costs of care at various stages of ALS. I really have no concept of the costs.

An example would be: ( I made all this up except for 1)

Year 1 - Average monthly cost $200. (Maybe $800 if on Rilutek and no insurance.)
- Needed orthotics cost $3000
Year 2 - Average monthly cost $400
- Spent $20000 adding ramp and remodel bathroom.
Year 3 - Average monthly cost $1500
- Needed wheelchair cost $28000
Year 4 - Average monthly cost $3000 - Needed daily care givers
- Needed vent and feeding tube - $15000
Year 5 - Average Monthly cost $5000 - Needed round the clock care

Jim
 
Hey Jim, it is really a fortune
I wonder what would one do if he doesn't have enough money.
 
Jim, I wish you would post your list of costs on my ALS Costs in Canada vs. US thread. It addresses that discussion very well, I think. Thanks. Carol
 
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