- Joined
- Nov 12, 2015
- Messages
- 657
- Reason
- CALS
- Diagnosis
- 11/2015
- Country
- US
- State
- CA
- City
- San Diego
So the latest supplements my PALS is convinced will cure his ALS are the "Leap2BFit" powders and L-Serine touted by Mark Manchester, who supposedly reversed his ALS. I've done a little digging and took a look at his facebook page and website. His facebook page is supposedly a "charity" that looks an awful lot like an advertisement for Leap2BFit supplements. He is fundraising on the page through PayPal, then claiming he is funding peoples' supplements. He also has a link where you can post your testimonials showing your dramatic improvement on this supplement. Claims his FVC went from 7% to 79% thanks to this supplement, and was vented and is now off the vent. He claims that Dr. Bedlack is evaluating Leap2BFit. I read Bedlack's evaluation and it doesn't come off as a recommendation.
I also checked out his website (another fundraising site) where he claims "We have currently gifted over 300 pALS and, after a recent survey of pALS gifted, %51.7 have reported slowing of progress or improvement".
I did see the thread here on the forum from last year discussing this supplement. I just paid my PALS' $400 credit card bill for this stuff. There must be money changing hands on this. I smell a rat here.
V
I also checked out his website (another fundraising site) where he claims "We have currently gifted over 300 pALS and, after a recent survey of pALS gifted, %51.7 have reported slowing of progress or improvement".
I did see the thread here on the forum from last year discussing this supplement. I just paid my PALS' $400 credit card bill for this stuff. There must be money changing hands on this. I smell a rat here.
V