amgelb123
New member
- Joined
- Nov 13, 2018
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Cheney
Hey all, thank you for taking peek.
I am a 23 year old male.
I have been body wide twitching for the past 5 years (2015).
In September 2018 I started having obstructive sleep apnea, which is strange because I am considered normal weight(150 lbs).
But in November 2019 I noticed that I chocked on saying a word just one time.
Now recently in the past months since about June 2020, ive been noticing that this has now been happening more frequently.
I am having more trouble saying words that contain n and m, making my voice sound hyponasal. Ex: "I think" => "I thig". This seems to happen more often when I am really tired. But I can be really drunk and hold a full conversation like normal. I just dont get this.
I do not slur my words but this manifestation is become more frequent.
Just recently I have had this funny feeling (when you sleep on a limb, and try to move it feeling) in my right hand, especially when I make a form resembling a pinch. This is exaggerated by cold weather, and makes my hand feel stupid (making it hard to use them).
Also I have noticed that food flavors leak up past my soft palate since August 2020. For example eating something spicy will always make me sneeze (this has never occurred before).
Probably irreverent things I wanted to point out:
My reflexes appear to by hyper-reflexive, when someone touches my shoulders or neck I jerk as if I was startled but I was not. Slightly bumping my knee into an object makes it react.
I frequently dream vividly of me eating foods that I enjoy and I can actually taste them.
I also frequently have recurring dreams of people I have met in the past that I would have not ever thought of ever again.
I have a doctors appointment next Thursday to address my sleep apnea for the 1st time.
I know it should be extremely unlikely for ALS given my age but the speech thing and the soft palate thing are the really worrisome symptoms to me. I will share these concerns to my doctor when I walk into his office.
I am a 23 year old male.
I have been body wide twitching for the past 5 years (2015).
In September 2018 I started having obstructive sleep apnea, which is strange because I am considered normal weight(150 lbs).
But in November 2019 I noticed that I chocked on saying a word just one time.
Now recently in the past months since about June 2020, ive been noticing that this has now been happening more frequently.
I am having more trouble saying words that contain n and m, making my voice sound hyponasal. Ex: "I think" => "I thig". This seems to happen more often when I am really tired. But I can be really drunk and hold a full conversation like normal. I just dont get this.
I do not slur my words but this manifestation is become more frequent.
Just recently I have had this funny feeling (when you sleep on a limb, and try to move it feeling) in my right hand, especially when I make a form resembling a pinch. This is exaggerated by cold weather, and makes my hand feel stupid (making it hard to use them).
Also I have noticed that food flavors leak up past my soft palate since August 2020. For example eating something spicy will always make me sneeze (this has never occurred before).
Probably irreverent things I wanted to point out:
My reflexes appear to by hyper-reflexive, when someone touches my shoulders or neck I jerk as if I was startled but I was not. Slightly bumping my knee into an object makes it react.
I frequently dream vividly of me eating foods that I enjoy and I can actually taste them.
I also frequently have recurring dreams of people I have met in the past that I would have not ever thought of ever again.
I have a doctors appointment next Thursday to address my sleep apnea for the 1st time.
I know it should be extremely unlikely for ALS given my age but the speech thing and the soft palate thing are the really worrisome symptoms to me. I will share these concerns to my doctor when I walk into his office.