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He has been sick for 2 1/2 years. He was at Mayo Clinic last year with breathing problems, they diagnosed him with Restrictive Lung Disease, said never get any better, or any worse, wouldn't shorten his life, just live with it. Over the last year he has gotten worse, I'm the advocate and won't give up. Finally after the pulmonologist say him in May, sent him to a dr. to do EMG, he found abnormality and forwarded us to neuromusclar nero. He did his own EMG, and then a muscle biopsy. After the EMG, he told us probably ALS, but the muscle biopsy would rule out anything else. He told us he would get us into the ALS clinic ASAP/ The next week 7-15 we say the head of the ALS clinic at the U of Minnesota. He said he thought it was ALS but to early to tell, but wants us to stay under his care. He did additional test for Lymes, LEMS, MG, and MS, all of which were negative so it leads only to ALS.
Sorry for the long history, but I though it would give you a good picture of what we are looking at. He has speech difficulty, breathing difficult and some weakness in one arm.
SSLTD is Social Security Long Term Disability. If you don't know what all the initials are for above, just search the web and they will tell you.